You said your son has lissencephaly. Would you mind telling me your story and what your LO is like? We are very much in the dark with all of it. His geneticist isn't even sure if lissencephaly is the right dx for Rowan. You can email me or PM me.
Only if you have time. I know what a pain it is to relay your whole situation to someone.
laceyruhge at gmail dot com