XP: If you've got a prayer, we could use it

SoonToBeTabor · September 2009

Also posted on 0-6 but I need some extra support.

DD is currently being worked up for an adrenal insufficiency and we could sure use some prayers for tomorrow...we're meeting with the endocrinologist for the first time.

What I know is that her body doesn't make enough cortisol, which calms you down when you are stressed or injured, so we have to make sure that we go right to the ER if she gets a fever, stops eating or becomes lethargic. If any of those things happen and we dont get to the ER in time we risk her going into shock or suffering a cardiac arrest. Depending on the degree of this, it could mean replacement hormones for the rest of her life and frequent hospitalizations. We'll have to carry with us a steroid dose of cortisol to give her at all times just in case she does get sick or overly stressed out (its a shot) .

All in all, this has been the hardest thing for us to deal with. When the Dr. mentioned this could be fatal, I nearly died...its like waiting for someone to drop a bomb on your life.

SOO if you pray or even if you dont we REALLY could use your prayers tonight.

TIA

kamcfarlane · September 2009

what a difficult situation. i will keep you and your LO in my thoughts and prayers. good luck tomorrow.

TriciaJoy · September 2009

wow, that's heartbreaking. I truly hope it's something else, something easier to deal with and treat. I'll say a prayer!

mcdev · September 2009

I will also say a prayer that whatever disorder your LO has, it is treatable and that you can be given more encouraging information on how to live with something like this. ?Did you post on the Special Needs board too? ?Maybe you will be able to find someone there who has experience in this. Good luck tomorrow and keep us posted.