In tears- neuro thinks Carter COULD have muscular dystrophy

jennieliz

I'm beyond upset and not sure where to go.  We've got several tests coming up (sedated MRI, sedated EEG, blood tests, DNA tests) and so we will know for sure within the next two months (that's how long it takes to get all the tests back).  I googled of course and I've been sitting here crying for a good 10 minutes.  Here are the complications:

• Cardiomyopathy
• Decreased ability to care for self
• Decreased mobility
• Joint contractures
• Mental impairment (varies)
• Respiratory failure
• Scoliosis

This is so overwhelming!  No one in my family has this so I have no idea where this is coming from.  Please thinks good thoughts for my little guy and pray he doesn't have MD or anything else serious.

Kersbear

*hugs*

camrude

I'm so sorry. I hope you get good news!?

Chrisy-Wyobride

Lots of prayers for your baby & family.   :::hugs::::

co18co

Oh Jennie, I am SO sorry you have to have all this stress on your shoulders right now.

Please, though, do NOT google!  

 

(hugs)

oparcm

You'll be in my thoughts.

tanda627

I am sorry I hope you get good news soon.

july05bride2

now i feel like a complete tool...i just posted about my dd's partial deafness in her ear and how bad i felt for her.  i wish we could just scoop up our kids and not have anything happen to them.  i hope the tests come back okay.

hopefulmom

I'll certainly be praying for your little guy that his tests all come back normal.

cooker71

::HUGS::

First, stop the Googling!!! Google is not your friend! Particularly when it comes to stuff like this, and when it involves your children.

I should talk, of course. I did that constantly after we first brought Miles home, and destroyed myself thinking about all the possible complications and what-ifs, etc. But really it does you no good.

Crossing my fingers for you and Carter that everything turns out OK. I can somewhat relate to what you're going through if you ever want to talk/vent. You are a strong woman and wonderful mother. Hang in there. Everything will be OK.

soontobemomma

Hope it turns out to be nothing!  ((hugs))

mamarazzi

((hugs))

I'll be thinking about and praying for you and your little guy.

sooosie

((hugs)) I hope the tests turn out ok!

shopgirl78

hugs and many prayers!  Hope all is well. 

debs1018

I will keep you in my thoughts. That is rough, I know easier said than done, but please dont google. Why does the nuero think this?

JennJim2006

Prayers, hugs, and good thoughts for you and your little guy.  He looks like a sweetheart!

akimbo

hugs and prayers for a great outcome for Carter

lizlemon77

I'm so sorry.  I hope everything turns out ok!

AnneUCSB

HUGS!!!!  I am so sorry you are going through this.  Hang in there and try not to do too much research until you have more solid answers.

MelandJeff

I am so sorry for this stress in your life, I will be thinking of you and hoping for good news.

Put the Google down. Seriously. It will not help you right now.

cnybride2be

hugs.  hoping for good news. 

tammy79

Sending lots of prayers your way.

meghans30

Lots of prayers and hugs coming your way.

femmegem

(((hugs))) Oh, I so hope he's okay!

DandelionMom

(((hugs))) Definitely step away from google.  I'm keeping Carter and you in my thoughts.

MarchMom06

Hugs. Sending good thoughts & prayers your way.

auggiedoggy

Prayers for your family and your little guy.

LestaMarie

I pray everything turns out fine and that the tests come back negative for any kind of neurological problems for your little boy.  He is adorable.

breezee_bean

I just said a prayer for you.  :::hugs:::

Temp108743750006959

Thinking of you and your little boy

LeisureSuitLauren

I'm so sorry. I'll be praying for Carter.

DandR

I worked at the MDA camps for 3 or 4 summers a long time ago,when I was young and single, and while it is a heartbreaking disease, those kids are soooo amazing.  The parents are as well.  And there are so many resources out there.  I really hope the doctor is wrong, but until you know for sure, stay off google and stay strong!

wellfleet04

Big HUGS.  I sort of know what you're going through (we are having to take Ben to all sorts of neurology and nuerosurgery appointments right now, and some very scary potential diagnoses have been thrown out) and I cannot stress enough that Google is absolutely not your friend in this situation.  Please, please try to stay off it (I should talk, but try) until you know what you're dealing with for certain, and even if it does turn out that he has MD, try to listen to your doctors and the experts and keep from obsessing online.  Just remember, even if you get bad news, Carter will still be the same amazing little boy that he was before you had that "label."

Lots of hugs and prayers.