I am a carrier of a Hyper IGM Syndrome which means that my sons may have and suffer from the disease and my daughter my be carriers like me .
I have never met anyone other than my mother who was a carrier . But she didnt know in advance and i do , Im looking for anyone who does and has had children for advice or support. I am planning on having children , my husband and i have discussed it thoughly and we desperatly want children. I am currently waiting on a refferal to a genetic counselor .
Anyone out there? any advice, tips or just someone to talk to !