Oh Beth, I am so sorry you guys are facing yet another uncertain obstacle. My thoughts and prayers are with you and Max every single day. He is a fighter and knows how to overcome odds. I pray that things calm down with him and he can hold on until the perfect time for his transplant. I do tend to agree with you that underdeveloped lungs should cause decreased sats when he is active more than when he is sleeping. Is pulmonary edema the culprit? I am praying hard that you get good news. Hang in there.
Prayers and Big Big hugs. Know that this board and everyone around yous hearts are filled with love and happy thoughts for you and your sweet little guy!
Re: We have some bad news ladies
Mom to Lily Gayle 4.25.06 Charlotte Kathleen 3.27.09 Samuel Thomas ~8.4.12~