So, DH and I recently changed our neurologist and our new neuro has set up a 72 hour video EEG to see the underlying cause of DS's seizures.
After this, DS will be on the ketogenic diet. I've noticed that when they were administering his medication (keppra, phenobarb, and topamax), he was still having spasms. Needless to say, I'm not optimistic.
Will keep you abreast on updates. I left the the hospital so I could take a hot shower and sleep in a normal bed. My brain just needs a break from answering questions from doctors and nurses.
How is everyone doing?