Let me preface this by saying that my DS has had ONE febrile seizure, with no reoccurances or any other types of seizures. That being said...
His febrile seizure occured in Oct. when he was 18 mos. It was deemed a medical emergency because it did last about one hour. We were in the hospital for a couple of days; he had an EEG which was normal and went home on Keppra (anti-seizure med). A month later he had an MRI and EEG and follow up with a ped. neurologist. All tests came back normal. She had recommended a book to me "Seizures and Epilepsy in Childhood" (put out by drs. at Johns Hopkins), which said children who had one febrile seizure (or even more than one, if deemed febrile) even if it lasted a long time like my sons really do not need medication, however an emergency medication such as Diastat (rectal gel) should be on hand if they were to have another long seizure.
I was surprised in Nov. when the ped. neur. said she'd like to keep him on the Keppra for a year "just to be on the safe side". I asked her why the book seemed to frown on that and she said it was because seizure meds. typically have always had negative consequences/side effects and in the cases of febrile seizure, it was better to have kids on nothing at all than risk the side effects. But she said they've found no negative side effects with Keppra (although it's only been on the market for about 8 years). I didn't feel great with the response, but have kept DS on it.
Now we just had a checkup again. DS is totally developmentally on and he also got through a 3 day stint of the flu where he wasn't keeping the meds down. She said those were great things and she'd like to up his dose (to compensate for his weight gain) and in 6 months do an EEG and take him off if he still is doing fine. I have asked her to do the EEG now and wean him now if she thought it was ok. All I got was,"Well I can't force you to give him medication if you don't want to." I explained I would do whatever she thought was best since I'm not a doctor but do worry about any potential long term effects of keeping him on this medication unnecessarily.
Do you think I'm being unreasonable? WWYD? I know it would only be 6 mos. but then he'll only be 2 1/2 and would still be prone to febrile seizures until age 5. We would still keep the Diastat on hand in case of emergency.