Anyone have any experience with this?

samanthony

Hello,

   My sister-in-law is pregnant with her third child. Recently, she did her blood work checking for downs and any type of neural tube problems. The neural tube portion came back elevated and she will be seeing a genetic specialist on Fri to continue with further testing. Needless to say, she is terrified. I wanted to know if anyone has had any experience with this.  Are the odds in her favor that everything will be ok?? TIA

amajane

I gotta be honest, though I hope I'm not being rude...

I REALLY HATE posts like this.

The whole "my/sister/cousin/friend had a screening test and I/she was told that there could be a problem with the baby. What should I do/say? Will everything be okay???"

Why are you asking us???

We are not doctors. We are moms with SNC. At some point of our pregnancy/DC's birth/childhood we received the?devastating?diagnosis that something was wrong with our DC. Do you want to know if it's possible that she'll have a SNC? Yes, it is. Do I know what her odds are? No, I don't. That's only something her doctor will know.

In our situation the odds were obviously not in our favor. Perhaps if you asked the same question on the parenting boards you might get a more positive and favorable answer.

Oh, and if she does have a SNC, that doesn't mean that everything won't be "ok".?

samanthony

amajane:

I gotta be honest, though I hope I'm not being rude...

I REALLY HATE posts like this.

The whole "my/sister/cousin/friend had a screening test and I/she was told that there could be a problem with the baby. What should I do/say? Will everything be okay???"

Why are you asking us???

We are not doctors. We are moms with SNC. At some point of our pregnancy/DC's birth/childhood we received the devastating diagnosis that something was wrong with our DC. Do you want to know if it's possible that she'll have a SNC? Yes, it is. Do I know what her odds are? No, I don't. That's only something her doctor will know.

In our situation the odds were obviously not in our favor. Perhaps if you asked the same question on the parenting boards you might get a more positive and favorable answer.

Oh, and if she does have a SNC, that doesn't mean that everything won't be "ok".

 

 

 

You know what? The nest board's are for people to interact and ask questions. I did in fact, post this on other boards besides this one. If you didn't like the question, don't answer. It's pretty simple

I am very sorry the odds weren't in your favor. Right now though, I am looking out for my sister-in-law who is scared and trying to get her all the info possible.  The last thing I need right now is to hear someone on the internet complain because they don't like my question.

amajane

Well I assume you wanted an honest answer.

I mean, c'mon, what did you expect here? Are you looking for reassurance? I can't give that and based on the lack of responses, I don't think many of us could.

I will tell you that in my experience, I wouldn't try to give her reassurance that everything will be ok. Because sometimes everything is not ok. She's scared. Actually, she's terrified. The best you can do is just be there for her. Love her, hug her. Listen to her when she needs to talk.

I remember when I was pregnant and we were told that there was probably something wrong with Marley. Many friends told me of knowing people who had been in a similar situation and when their DCs were born the DC was perfect. Alas! The doctors were wrong!

That didn't help me at all. The reality was that something was terribly wrong and I didn't know how serious it was until she was born. I know my friends were trying to be helpful but I felt so alone because they never really acknowledged the fear and I pain that I was currently going through.?

So instead of trying to find answers for her just tell her that you love her, that she is a strong woman, and that she will get through this painful time.?