How is Avya doing? I hope she is well. Are the injections working? I really hope so, you guys deserve a break from the IS. How is she doing developmentally? Was she able to relearn any of her skills while still having the IS?
Lincoln is starting to have some cluster seizures again, and although they look different than before, I am afraid that they are the IS returning. We may end up doing the ACTH injections also, if we cant get them back under control by increasing the Vigabatrin.
Anyway, I just wanted to let you know that I have been thinking of you guys, and hoping for the very best. Hugs!