I replied to your post below. I also wanted to send you this link from the Feeding Clinic we're trying to get the boys into. It has a list of websites that you might find useful one day.
https://www.mwph.org/services/feeding_resources.htm
Hugs!
Laura
Re: Sweater!
Thank you! I've been reading like crazy lately on everything reflux related and feeding tubes.
I think it's a good idea for you to go with the NJ tube...I PRAY it helps and I have a feeling (you know I have!) that they'll gain weight soooo much easier this way.
I'm starting to think Jax's g-tube needs to be thread into a GJ...I'm waiting for the GI nurse to call back about a few things and I'll be discussing it. When I'm up at 11:30, 1:30, 2, 3, 4:30 and then every 30 mins until I finally just give up and bring the kid downstairs...I sit there in the dark holding his vent and wiping sweat off his forehead from heaving...I've been thinking of the j-tube...I just don't know what else.
PLEASE keep me informed of how the NJ tube goes and HUGS and KISSES to you all....good luck sweets.?