Antiphospholipid Syndrome or Thyroid Peroxidase Antibodies? — The Bump
High-Risk Pregnancy

Antiphospholipid Syndrome or Thyroid Peroxidase Antibodies?

Hey all - I've been ghosting this board for the past month or so and am hoping for some input/experience!

I had two miscarriages in a row (last one in June) with no live children, and I was fortunate enough to have an OB who agreed to pursue recurrent pregnancy loss testing. Since then, I've tested positive for lupus anticoagulant syndrome, antiphospholipid syndrome (cardiolipin ab was high), as well as a very high reading on my thyroid peroxidase antibodies. Further thyroid testing also shows high TSH (almost 5.0) but normal T3 and T4 for now. Hashimoto's runs in my family. 

It was good that I was able to find some things out with the testing, but now it seems I have some pretty serious autoimmune disorders to get under control before ttc again. I was just wondering if anyone has been diagnosed with any of these and gone on to have healthy babies?

I'm assuming I'm going to be high risk next time I get pregnant and since I'm at the beginning of this new journey, would love to hear what anyone with a similar situation learned or what types of treatment/lifestyle changes were made to support a healthy pregnancy with these conditions? Keeping fx that 3rd time will be the charm! Thanks for your input. 

Re: Antiphospholipid Syndrome or Thyroid Peroxidase Antibodies?

  • I was diagnosed with antiphospholipid syndrome with my Lupus diagnosis. I am currently pregnant for the first time and am now 33 weeks! I think it is important for the doctor to be aware, and it was enough for me to get referred to high risk OB. They have me taking a baby aspirin the entirety of pregnancy, and I am seen more often (weekly now). But so far no complications.
    of course I am having a different experience as I’ve never been pregnant or had a miscarriage before. Definitely talk to doctors and autoimmune specialists before getting pregnant again to set yourself up well.
    im so sorry for your experience and then to find out all of this. I hope for a healthy baby in your future <3
  • Thanks @Emily Browning! I have a follow up with my hematologist this week to discuss my test results and hear his recommendations for treatment so fx! It's been a rollercoaster these past few months but I'm trying to remain hopeful and address as many issues as I can prior to ttc again. Hoping to be back into ttc before the end of this year.

    Congrats on your first pregnancy!! So happy and excited for you and I hope everything continues to go smoothly 😁❤ best of luck in your 3rd trimester!
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