June 2015 Moms
rklinge0
member
Birth Story, Baby with d.s.
rklinge0
member
My baby girl was born on Monday May 25th, 8 days early. We were set to be induced on the 26th but she had other plans as my water broke Sunday at dinner time.
Before birth the ob had seen something at an u/s at 27 weeks where she had fluid on the brain mild ventricular meglamolmy so I was sent to a mfm at the time and for the next 3 months. They had given me 4 scenerios of things that could be wrong, trisomy 13, 18, 21 and dwarfism because the bones were small. I didn't do chromosome testing during my pregnancy because the odds for downs with someone my age is 1 in 1200, and even with the soft markers a 4 percent.
When she was born Monday morning, it was pretty evident that she has it. I got to spend some skin to skin with her after birth but that afternoon she had trouble regulating her temperature. She was sent to the nicu and has been there ever since. Currently she is hooked up to monitors to track her breathing since she was having trouble with oxygen levels. She is hooked up to Ivs to give antibiotics in case she has an infection and they have put a feeding tube in since she wasn't drinking enough milk and having trouble keeping her tounge back. They have done an echo and said there was a small tear between 2 chambers of her heart, this may or may not require a shunt. They don't know if it will require surgery but it shouldn't be immediate.
The hardest part is not being able to hold her as everything right now has been a lot to take in.
Here is a picture of baby Renee
Before birth the ob had seen something at an u/s at 27 weeks where she had fluid on the brain mild ventricular meglamolmy so I was sent to a mfm at the time and for the next 3 months. They had given me 4 scenerios of things that could be wrong, trisomy 13, 18, 21 and dwarfism because the bones were small. I didn't do chromosome testing during my pregnancy because the odds for downs with someone my age is 1 in 1200, and even with the soft markers a 4 percent.
When she was born Monday morning, it was pretty evident that she has it. I got to spend some skin to skin with her after birth but that afternoon she had trouble regulating her temperature. She was sent to the nicu and has been there ever since. Currently she is hooked up to monitors to track her breathing since she was having trouble with oxygen levels. She is hooked up to Ivs to give antibiotics in case she has an infection and they have put a feeding tube in since she wasn't drinking enough milk and having trouble keeping her tounge back. They have done an echo and said there was a small tear between 2 chambers of her heart, this may or may not require a shunt. They don't know if it will require surgery but it shouldn't be immediate.
The hardest part is not being able to hold her as everything right now has been a lot to take in.
Here is a picture of baby Renee
Re: Birth Story, Baby with d.s.
Thoughts and prayers and well wishes to you.
P.s, I've read some really great blogs from people whose child was unexpectedly born with ds I will try to find them for you and post the link if you'd like
~~~ EDD for Baby #2 6/28/15~~~~
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A blog I've been following for years Enjoying the Small Things (kellehampton.com) her second daughter was born with DS. It was a huge surprise after she was born as they never did testing when she was pregnant. She wrote a book called Bloom, I cried I laughed I wanted to be her best friend when I got done reading it. It's the story prior to and after her daughter was born. She's open and raw and honest. I highly reccomend it.
Praying for patience, understanding, mountains of love, and years of happiness for your family and those around you!
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