July 2015 Moms

Clotting Disorders?

Just wondering if anyone else has been diagnosed with a clotting disorder? I have been told I have 4g/4g PAI1 genetic mutation. No one in my doctor's practice seems to know anything about it, so I thought maybe someone here might be familiar. They didn't know what to do with me so I'm on a daily baby aspirin. .. ? I have Google searched but it all seems meant for scientists! Scared....

Re: Clotting Disorders?

  • I have two clotting disorders, factor v leiden and mthfr. I'm not familiar with the one you have but I am unfortunately very aware of doctors having very little knowledge of how to handle clotting disorders and having very little experience.

    Have you tried a search on the high risk board? I have shared and received a lot of great info with ladies over there. Are you seeing a high risk doctor? I am going to see a perinatal consultant in addition to my ob (I also am over 35 so would see them anyway) and they seem to have a bit more experience.

    I take a daily baby aspirin and daily lovenox shots so happy to answer any questions depending on your treatment! I also have a healthy 15 month old so this is my second go around as high risk. Congratulations and try not to be too scared :)
    Baby Birthday Ticker Ticker
  • I have factor v leiden as well. Also on lovenox. I co-op between my regular OB and the high risk mfm clinic. It can be tough and stressful having a blood disorder but you just have to keep your head up. Best of luck to you :)
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  • Thanks ladies :smile: it helps to know I'm not alone. I am already high risk due to chronic htn and have a consult scheduled for Friday. No one mentioned injections yet (I get needle anxiety for no apparent reason) so they might be trying to keep me from freaking. Thanks again!
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