Late Term and Child Loss

Loss check in

Hi ladies, hope it was a gentle week!

Welcome to the checkin! I am sorry to have to welcome new loss moms this week but am so glad that you have found us. I hope we can bring each other some much needed comfort and support. Please feel free to join in when you are ready and share as much or as little as you wish. Also, if you have any questions you would like answered, just ask! Any lurkers out there please don't be shy, we would like to be able to support you too.

Have you taken any new steps towards healing this week?

What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?

QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could? 

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Lilypie Angel and Memorial tickers
BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
Diagnosed with PCOS in 2005. Started Metformin July 2013

BFP # 2 8/7/14 EDD 4/22/15
Please be our rainbow!!

**All AL Welcome**

Re: Loss check in


  • Have you taken any new steps towards healing this week?
    We went to a friend's wedding out of town this week. There was a 2 year old there and a 4 year old there. We didn't leave; we just avoided them as much as possible. I don't really know if that counts as a step towards healing or just a step towards surviving.
    Also, I had a drink with one of my best friend's this week. He and his partner had a baby a couple weeks after we lost our babies. We both went through infertility struggles together and they got pregnant on their second IVF cycle after three failed transfers. We were all really looking forward to raising our babies together. I haven't been able to meet their baby yet and I don't know when I will feel up for it. But it felt good to see my friend. It was hard, but it was not harder than not seeing him is.

    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?
    I want to see the 1 year old and the 4 year old that I'm an aunty to. (They're a good friend's children and we have been pretty involved in their lives). I don't know when I'm going to be up for that, but it's a goal I have.
    Also, @Manada and I are going to try one of the support groups again this week. It was the one we didn't like the first time we went and I got too anxious to go the last time they met. We're hoping that it will be better this time. We think it's really a matter of who is in the room, and we know that varies a lot from meeting to meeting. We really like the other support group we've gone to, so we're hoping that the one we don't like will redeem itself.

    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could?
    From what I understand, there was nothing he could have done. So, I guess he did everything he could. Except that he didn't warn us that the debris at the cervix could be/cause an infection that would cause the water to break. He talked about the debris in terms of the risk of irritating the cervix. Knowing that an infection and the water breaking was a possibility wouldn't have changed anything except that it would have given us even more cause for anxiety and worry. But I still think he should have told us.

    ****loss discussed*****

    We're queer. I'm 33, have severe stage 4 endo, and had both fallopian tubes removed. My love ("Manada" on the boards, 32) was diagnosed with diminished ovarian reserve. We did Partner IVF (my eggs, her uterus). We lost our twins Tavin and Casey at 21 weeks gestation.

    Our IUIs
    with @Manada: IUI# 1-7 (December 2012- September 2013) all BFN. Tried natural, femara, clomid, puregon/follistim, clomid and menopur combo, both the ovidrel and HCG triggers.

    Our IVFs:
    IVF #1 my eggs November/December 2013: Cancelled IVF due to poor response

    IVF #2 my eggs/Manada's uterus January/February 2014
    BCPs and lupron overlap Stimmed: 1/22-2/2: Bravelle and Menopur (dosage ranged from B300 and M150 to B375 and M150 to B300 and M225)
    2/4 retrieved 10 eggs. Endo was much worse than expected. Only 3 eggs fertilized; February 7 transferred two day 3 embryos, froze one. All great condition.
    BFP eve of 6dp3dt; Beta 1 (11dp3dt): 110; Beta 2 (13dp3dt): 175; Beta 3 (15dp3dt): 348; Beta 4 (19dp3dt): 2222; Beta 5 (21dp3dt): 4255
    1st ultrasound (3/6  6w 1d): TWINS!!!! Twin A measuring 6w1d with a heartbeat of 118bpm. Twin B measuring 6w0d with a heartbeat of 113bpm. 

    ***July 18, 2014 we lost our beautiful babies at 21 weeks gestation. They were born too early. Tavin Sara T. and Casey Elizabeth T. are beautiful and precious and we will love them and miss them forever.***

    FET #1 December 2014
    Intralipid infusion on Dec 10. Transfer of 1 day 3 nine-cell embryo into my uterus on Dec. 19. (acupuncture immediately before and after)
    BFP on Dec. 27; Beta 1 Jan 2 (14dp3dt): 665, Beta 2 Jan 4 (16dp3dt): 1859, Beta 3 Jan 6 (18dp3dt): 4449, Beta 4 Jan 10 (22dp3dt): 12,251.



      Lilypie Angel and Memorial tickers
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  • Have you taken any new steps towards healing this week?  

    I got coffee with another mom who has lost a baby.  We talked for 2 hours and could have talked for 6 more if we had the time.  It was great to talk about Caroline with someone who gets it. 

    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?  

    I am still trying to be more productive at work - taking that one day at a time.

    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could? 

    I loved my OB and Caroline's chromosomal condition was not OB management related - no one is to blame, trisomy just happens randomly.  I was happy with the way I was treated while I carried to term and my OB would have done whatever I wanted as far as delivery went.  We decided on a med-free vaginal delivery without monitoring and he supported us in that.  He cried when she was born alive and I will never forget that.
    Lilypie Angel and Memorial tickers
                                        motheringcarolinegrace.wordpress.com

    Lilypie Pregnancy tickers
  • Have you taken any new steps towards healing this week?
    Still working on getting back into shape. It's not easy, but I'm trying my best to stick with it.

    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?
    Still applying, sending out my resume and interviewing to find a new job. We are moving this month to our new home. We had planned to move sometime after our son arrived - it's closer to family. So we are getting ready for our move. 
    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could?
    I had a midwife and I think they did everything they could have. My son died of a cord accident the day of his delivery. He had been kicking the night before at 10pm as we went to sleep, my labor woke me from my sleep at 2 am. We arrived to hospital at 6am as instructed when contractions were closer together. They could not find his heartbeat and my son was gone.
  •  
    Have you taken any new steps towards healing this week? 
    Hmm, not sure I've made any steps but it's been a good week

      

    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?
    Continue to get healthy

    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could?   I love my OB. She was really great with us and Ana. I do believe she did everything she could, and nothing could have saved Ana. Unless I went into labor early at 36 weeks, which wouldn't have happened. She is a caring, loving woman and I can't wait to see her again once I'm pregnant.

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        My Blog

    Lilypie Pregnancy tickers
      

    Lilypie Angel and Memorial tickers
    BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
    Diagnosed with PCOS in 2005. Started Metformin July 2013

    BFP # 2 8/7/14 EDD 4/22/15
    Please be our rainbow!!

    **All AL Welcome**

  • @healz413 Glad you made it through the wedding. It does get easier with time, seeing other kiddos. I still struggle with newborns, or kiddos around Ana's age, but much better than it was those first few months.

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        My Blog

    Lilypie Pregnancy tickers
      

    Lilypie Angel and Memorial tickers
    BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
    Diagnosed with PCOS in 2005. Started Metformin July 2013

    BFP # 2 8/7/14 EDD 4/22/15
    Please be our rainbow!!

    **All AL Welcome**

  • @msunshine123 hope the move goes smoothly...what do you do for work?

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        My Blog

    Lilypie Pregnancy tickers
      

    Lilypie Angel and Memorial tickers
    BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
    Diagnosed with PCOS in 2005. Started Metformin July 2013

    BFP # 2 8/7/14 EDD 4/22/15
    Please be our rainbow!!

    **All AL Welcome**



  • Have you taken any new steps towards healing this week?

    I think I have settled on a tattoo design. I'm thinking of getting it on my wrist. I want to always have Ben with me and this is as close as I can get.


    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?

    Still trying to get healthy. Trying to be more active. I'm doing well and was down a pound last week. Fingers crossed for another pound lost tomorrow at weigh-in.



    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could? 

    My ob wasn't actually there. We were in a car accident so they took us to a hospital outside of our coverage where they have MFM. When they transferred us to an in network facility he came to visit first thing. He hugged me and teared up, met dh and stayed to talk for a while. He was very sweet. At my pp visit he told me to come in any time to talk but that medically speaking, he didn't need to see me until we tried again. He's so awesome.
    Lilypie Angel and Memorial tickers
    Lilypie Fourth Birthday tickers

  • @shandorfml2 - thanks:) I'm a PT.
  • @hsabyan - your memory bears are such a great idea and I have no doubt they will provide a lot of comfort to people. The hospital we delivered at gave us a new blanket to go home with and I wish all the time I had something that smelled like my son.
  • @hsabyan I also love your bear project. How sweet!

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        My Blog

    Lilypie Pregnancy tickers
      

    Lilypie Angel and Memorial tickers
    BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
    Diagnosed with PCOS in 2005. Started Metformin July 2013

    BFP # 2 8/7/14 EDD 4/22/15
    Please be our rainbow!!

    **All AL Welcome**

  • Have you taken any new steps towards healing this week? Not really. I feel stunted in my steps toward healing.

    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal? I think I've mentioned this before, but I want to print some pictures of the boys. I'm a lot of talk and no action, so I probably need to give myself a deadline. (P.S. We were married 5 years ago and I still don't have 1 wedding photo ordered!) Official deadline I'm giving myself: September 1

    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could?  I did not feel confident with my last OB at 11w, so I switched to a MFM practice that would see me and deliver me. They were touted to be the 'best in the area', so I felt pretty safe until they discovered my cervix shortening at 21w2d. I do not feel they did everything they could, so even if other interventions would've failed--I wouldn't have this WHAT IF feeling all the time. I begged for a cerclage. I begged for a pessary. I begged for p17 shots. I begged for in-patient hospitalization. I was told to go home and come back in a week with my bag packed. I made it to 21w6d after a very uneventful and normal pregnancy. At my 6w follow-up they told me I would not be their ideal candidate for a TAC (transabdominal cerclage), because I've "only" had one loss and they "think" a preventative TVC (transvaginal cerclage) "might" work for me next time. That comment was the icing on the cake for dropping them. 
    My RE's office showed more compassion than my MFM practice. Next time around my RE will refer me to the MFM practice most of their doctors and nurses use and I will ask the MFM for a recommendation for an OB's office they work well with. Luckily I'm in a large metropolitan area with a lot of fine doctors.

    image
    TTC since 10/2010
    IUIs # 1-5 = BFFN
    IVF # 1(July 2012) = BFN
    IVF # 2 (November 2012) = BFP (MIssed MC D&C @ 8w3d on 1/10/13)
    IVF # 3 (June 2013) = BFN 
    IVF # 4 (September 2013) = BFP Fraternal twin boys! (Loss at 21w6d due to IC on 1/26/14...devastated.)
    3/21/14--TAC (transabdominal cerclage) w/Dr. Davis in NJ
    IVF # 5 (May 2014) = BFN
    FET (August 2014) = BFN

    Lilypie Angel and Memorial tickers
  • @msunshine123 Way to go! Perseverance is worthy of celebration.

    @healz413 Surviving or healing, it’s a step. J

    @lexusolsen Way to go! I’m inspired to try to get back on the “exercise train” by you ladies.

    @”Maybe Joleisa” I have to give myself deadlines too. We were also married 4.5 years ago and I don’t have a single picture printed. Maybe we should hold each other accountable!

    Have you taken any new steps towards healing this week? 

    A gardener friend of mine helped me to create a garden in our backyard in honour of Serenity. It was really nice to feel like I was "doing" something for her. I am going to add the prayer flag (from Carly Marie's Project Heal) when DH and I are finished making and a beautiful butterfly ornament that a sweet friend bought me for her due date. I'm happy with it and glad to have a space that I can go and enjoy quietly while remembering her. It feels super healing.

    What is the next goal you have set for yourself? Do you have a plan to help achieve that goal?
    I'm really working on getting back to a state of "normal". If you've been following my (ridiculous) posts, you'll know that there have been lots of physical issues going on and I've landed myself in the hospital to stay more than twice over the past few months. My goal is to get back to regular things like cooking healthy food and keeping a (relatively) organized house. Just to regain some sense of basic "normal" while I find my emotional "new normal". The plan is to take baby steps each day. Do a little bit more every day than I did the day before.

    QOTW: How do you feel about your OB since your loss? Do you feel they did everything they could?

    We didn't have an OB (used a midwife) and were then sent to a specialized hospital because of Serenity's diagnosis (Turner Syndrome) where we saw a number of OBs (all of whom were wonderful). The after care is a bit of a concern for me. I feel pretty frustrated that it took them 4-5 months, 2 D&Cs, and 2 blood transfusions to figure out that there were retained products, but maybe my case wasn't as "cut and dry" as they usually are. Needless to say, that was frustrating. Sometimes I wonder if I did have an OB initially if things would have been acted upon more quickly because I wouldn't have needed a referral from my family doctor. That said, I'm pretty sure we'll stick with our midwife next time around (if there is one). She was lovely through the whole process and the loss and was there even though she wasn't medically required as the OB on call did Serenity's delivery. I'm also hoping for a home birth (that was the original plan with Serenity), but who knows. Lots to figure out before then and we're benched for 6 months because of my "weird" uterus issues anyway. Wow that was long. Sorry ladies. Thanks for reading if you made it this far!
    Lilypie Angel and Memorial tickers
  • @LyndseyTS: I really hope you are back to 100% soon. My goodness. My excuse for no wedding photos is because I hated our photos and am a horrible decorator. Yours? What is our deadline--before 2015? (I'm okay with putting it further out, as well!) ;)@shandorfml2: I paged down through here past your posts and had to scroll back. LOL @ your siggy pic

    image
    TTC since 10/2010
    IUIs # 1-5 = BFFN
    IVF # 1(July 2012) = BFN
    IVF # 2 (November 2012) = BFP (MIssed MC D&C @ 8w3d on 1/10/13)
    IVF # 3 (June 2013) = BFN 
    IVF # 4 (September 2013) = BFP Fraternal twin boys! (Loss at 21w6d due to IC on 1/26/14...devastated.)
    3/21/14--TAC (transabdominal cerclage) w/Dr. Davis in NJ
    IVF # 5 (May 2014) = BFN
    FET (August 2014) = BFN

    Lilypie Angel and Memorial tickers
  • @Maybe Joleisa‌ i like the idea of a deadline...i have a few things I need to do (including wedding photos from three years ago!!)

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        My Blog

    Lilypie Pregnancy tickers
      

    Lilypie Angel and Memorial tickers
    BFP# 1 7/7/12 Beautiful DD born still at 36 weeks 5 days on 3/2/13
    Diagnosed with PCOS in 2005. Started Metformin July 2013

    BFP # 2 8/7/14 EDD 4/22/15
    Please be our rainbow!!

    **All AL Welcome**

  • @Maybe Joleisa‌ 2015 sounds good! I'm also a terrible decorator (or at least a scared one?). I'm afraid that if I do something I won't like it. I'm not super happy with the way things are now though, so really what do I have to lose? I'm trying to convince myself here. @shandorfml2‌ Welcome to the accountability club! We will all have something done with wedding photos by 2015. Any opposition?
    Lilypie Angel and Memorial tickers
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