Would you be worried? UPDATE

knottie92178cc45b4fccea

I'm a little worried DD doesn't look at faces much. She interacts by cooing and smiling but she rarely looks at our faces, also she's never been interested in the tv. When I read about your babies watching tv I can't help but think DD never seems remotely interested. What do you guys think? TIA

Update: we had our 4 month check up today and I mentioned the above to my pedi she got us a same day appt with the eye doc. I'm so sad, they diagnosed her with optic nerve hypoplasia. This means she will never have normal vision to the point of not being able to drive a car and needing special assistance in school. What's scary about it is it's associated with endocrinology and neurological problems. We have to have an MRI done and blood work drawn. I feel like she's so normal besides the sight issue so I'm hopeful everything else will come back normal. Anyone else have experience with ONH or septo-optic hypoplasia? Thanks ladies!

redhead610

Bring it up at your next pediatrician appt.

Does she look at toys if you hold them in front of her? If you smile at her, does she smile back? Does she turn in the direction of your voice when you aren't right in front of her? I would keep an eye on things like this and talk to the doctor about it.

cuterusaurus

Be happy she's not interested in tv. try to interact in different ways with her (if you don't already); make funny faces, silly sounds, sing to her. Let your ped know your concerns. They'll keep an eye on her and watch how she develops. If there is anything developmentally wrong, there are many ways to help with her being so young. Routines are very good for any kid. I don't mean exact times of day, because it's nearly impossible to keep an exact schedule with many babies. some docs say they can't diagnose developmental issues until baby is two years. I'm not a doc, and I don't see her... just letting you know what I learned while teaching and doing work with kids with different abilities.

knottie92178cc45b4fccea

Thank you ladies! I will! We see the dr next weds and I'll update then! Thanks again.

knottie92178cc45b4fccea

Update: we had our 4 month check up today and I mentioned the above to my pedi she got us a same day appt with the eye doc. I'm so sad, they diagnosed her with optic nerve hypoplasia. This means she will never have normal vision to the point of not being able to drive a car and needing special assistance in school. What's scary about it is it's associated with endocrinology and neurological problems. We have to have an MRI done and blood work drawn. I feel like she's so normal besides the sight issue so I'm hopeful everything else will come back normal. Anyone else have experience with ONH or septo-optic hypoplasia? Thanks ladies!

Lelo2006

I don't have any experience but I'm sorry for the news & that you're sad. Just stay hopeful! I am crossing my fingers that nothing else comes back as abnormal.

TheLittleRedM

I have no experience with this but I'm glad you talked to your pedi about your concern. I hope her results all come back normal!

yelyah4826

Aww I'm sorry for your LO- but on the bright side- you had an awesome pedi and eye doctor that figured this all out and diagnosed her so quickly- also a huge Way to go to you for noticing it and sticking to your gut, and getting a diagnoses while she's still so little- I'm sure you guys will figure it all out shortly. Fingers crossed that there are no further issues. Thinking of you.

littlelegslo

I'm sorry for the news! I hope everything else comes back okay.

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MRads

I'm sorry for the news

emandia

Oh that must be so scary for you. Sending lots of prayers and hugs!!!!

fabk

I'm sorry. T & P for you guys.

jackson290721

So sorry! FX for normal results from the rest of the tests. 

PrimRoseMama

I'm sorry.

coco2787

Aw sorry to hear that it's not good news I hope all the other tests come back normal!

chiboo9

Oh, I'm so sorry mama Hope everything is great and normal with all other tests.

spb27

Sorry. No experience but I hope all the other tests come back normal.

rooter84

I have no experience either, but just wanted to say I will be thinking about you guys.

melangbun

I'm sorry to hear this. I don't have any helpful insight but I commend you for noticing so early on and addressing it so quickly. Sending positive thoughts your way 

giraffeluvspi

No experience here, but I have hugs! Lots if T&P this doesn't turn out to be more than vision related.

Melmac2585

Im sorry to hear this but glad it was caught early. Your LO will grow up stronger and braver because of this- hang in there.

Carrie3102

I'm sorry to hear this. Hopefully everything else comes back normal. Thinking of you all.

Kitten80

I'm so sorry about the news. Take the time you need to be sad, but be proud of yourself for recognizing the issue and having a medical person (ped) in place that took your concern to heart and acted quickly. T&P that the other tests come back normal. (hugs)

shara3333

So sorry.

JELM2004

I'm so sorry for your news!

dontgiveupnomatterwhat

I am so so sorry. Hugs to you and baby.

Clyde013

Im sorry! Fx that the tests come back ok.

EagleWife

Just now seeing this thread. I'm so sorry. I have no experience with it, but wanted to say I'm glad that you got an answer so quickly. Good luck, mama!

karen0477

I'm sorry to hear this, no experience, but it sounds like your ped is on top of it.....

knottie92178cc45b4fccea

Thanks everyone! I will hopefully have updates early next week. And @lizabethann06 I would absolutely love that! Thank you!

cuterusaurus

I'm sorry! I'm so impressed that you were aware enough to realize something was amiss, and I'm glad your ped took you seriously. Hoping the other tests have a good outcome!

JTA2426

Way to go for noticing that. It sounds like whatever your LO will face, she will have her mom as her advocate. We see a lot of really great outcomes with babies who have good families in their corner. That being said, I have seen isolated optic nerve hypoplasia in babies in the NICU. Try not to worry until you get everything else checked out. One step at a time! Hope you get good results.

losersaidwhat

candiam123 said:

Update: we had our 4 month check up today and I mentioned the above to my pedi she got us a same day appt with the eye doc. I'm so sad, they diagnosed her with optic nerve hypoplasia. This means she will never have normal vision to the point of not being able to drive a car and needing special assistance in school. What's scary about it is it's associated with endocrinology and neurological problems. We have to have an MRI done and blood work drawn. I feel like she's so normal besides the sight issue so I'm hopeful everything else will come back normal. Anyone else have experience with ONH or septo-optic hypoplasia? Thanks ladies!

I know this is an older thread, but I found it searching forums and I was wondering if you had any more developments and how your daughter is doing now?

I'm on the October '13 board, so my DS(3) is only 10 weeks old, but we've been noticing for a few weeks already that his eyes seem to be pointed downward slightly (the doctor pointed this out at his 4 week appointment and said to keep an eye on it). At this point he's still not looking at faces/no mutual gaze, and doesn't track objects at all. Waving things around doesn't get his attention, and things with lights don't even seem to phase him at all (most babies will look towards lights). He turns his head to sounds but other than that it doesn't seem like he reacts to anything visual. He also seems to have a bit of nystagmus but it's really intermittent - only sometimes it seems like when he tries to look up, his eyes bounce like they're being pulled downward and he's fighting it.

My cousin's son (DS's second cousin) was diagnosed with ONH when he was 3 months old and at first they were told his optic nerves were only developed 50%, but that has since been bumped up to 70%. He's 4 now in a couple weeks and has been given glasses (!) and I see him play with his little sister, and my oldest son, running around and playing and laughing and he's very smart - I wouldn't have even known just to watch him that he is legally blind. Some good news as well is that ONH is not degenerative, so even though there is no way to fix it, it won't get worse.

So far we had an appointment with an optometrist on Monday, though there isn't much they can do from there without seeing a specialist at such a young age, except for confirm/agree with our observations, so we've been given a referral to an ophthalmologist to get the ball rolling. It will be at least a month until we can get an appointment with them so it's just sitting and waiting for now, and after this appointment he'll likely be given an MRI eventually as well. I'm so sad thinking about the possibility that my baby can't even see me, but I'm hoping that everything turns out as well as it has so far for my cousin.

valstulas

I'm so sorry you're going through this. I hope the MRI comes back normal. You're a good mama for catching this early and getting her early intervention.

atlvol

I'm sorry I hope the other tests come back normal. I'm glad your pedi was on it and you have answers.

opheliainwaders

So sorry to hear that they found something wrong, but seriously, great job mama of noticing, and finding it EARLY. This means that if there's any sort of early intervention program you can do, she'll wind up having much better support from the start. Hugs!!