July 2013 Moms
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Yesterday: Latch. Today: Home. Tomorrow: The World!

I can't believe we are just a few hours from discharge! I'll try to PIP a home pic, but I'm not sure how long it will be before I'm able to spend much time on here so I thought I'd check in while Luke is sleeping and DH is out of the room (I think he's up to something).

Yesterday was a rollercoaster. Mt. Lukesuvius had a massive eruption all over his bed first thing in the morning and then didn't feel good to the point that he was whimpering and crying and so they did a CBC, blood culture, the works to check for infection. Everything came back normal, but I was convinced it was going to delay going home - it was a stressful morning/early afternoon

Then he let out a massive fart, and after that he was fine.

Since he's been doing ok with his 10ml bottles, I have a glimmer of hope that he'll nurse eventually and wanted to try one more time while I still had NICU support (the first 3 times he screamed bloody murder). And - he LATCHED! We could only let him go for a very few minutes, but it was amazing. Even if it never happens again, we did it once.

We're now completely unhooking from the IV for 6 hrs/day, so we're waiting until he's unhooked and then we'll be heading home. It's strange, leaving the only place we've known our son so far, where we've had so many firsts and tears and smiles. We never wanted to be here, but there are a lot of people we'll miss very dearly.

We'll have a little time at home by ourselves this afternoon, then a nurse will be coming to teach us the home IV equipment, and we're still working out home healthcare with insurance but they're aiming for having a nurse at our house 12hrs/day at first. Which will be really weird. But it is a little stressful to think about suddenly doing all this on our own, so I think it's for the best and we can reduce the hours whenever we're comfortable.

I used to think we would eventually get to a point where everything was fixed and we could put all this behind us when we left the hospital. As if right now, Luke is still getting 100% of his nutrition from the IV and we're just doing bottles to get his guts moving and make sure he remembers how to eat, so we have a very long road ahead of us still. But we'll keep moving forward, and we'll get there one way or another. Tonight, we turn off the porch light for the first time in over four months, because everybody will be home.

FKA mimi4347: diaper rash magician and unofficial expert on excrement
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This kid may not have a lot of bowel, but he has plenty of guts! 
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 7 trips to the OR, G-button, daily TPN....
We are impatiently awaiting the day we can say goodbye to his girlfriend Ivy for good.

Re: Yesterday: Latch. Today: Home. Tomorrow: The World!

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    Yea your last sentence made me tear up. So so happy for you guys! Enjoy being home :-)
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    It is wonderful to hear that everyone gets to go home. You are so strong!

     

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    Turn that porch light off Mama! Great news!
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    I don't post much on here but your story has inspired a post. How incredible for your family! You are all so strong. Sincerest congratulations from my family to yours. And have a very special homecoming. =)
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    I'm sitting here crying. I'm so so happy for you. YAY. You are amazingly strong and I wish you the best transition home and LO's continues growth. I'm so happy for you.

    TTC since 6/2003. m/c 9/14/03 8 weeks, 5 chemical pregnancies, mmc 6/04 12 weeks, Michael born sleeping 5/25/05 at 22weeks always our angel, fought ovarian cancer and won, m/c 4/06 5.2 weeks and 7/07 6.6 weeks,Our Miracle baby girl born 4/8/10,mc 12/18/11 at 5.3 weeks, BFP 10/26/12 dating u/s on 11/8/12 showing a strong heartbeat!EDD July 4,2013. RCS on 6/27. Baby boy in NICU for 8 long and scary days before he was able to come home. We are now a happy family of 4

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    Waterworks! Congratulations and hope everything goes well at home!
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    Great news! I am so happy for you!!

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    Words can't express how happy I am for you!  :) 

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    That is so amazing! I remember when the doc said you would be lucky if he was home by thanksgiving! Tears of joy for your family over here!
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    So happy for you all! You are such a strong woman and have a very brave little boy!!

     

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    That is so awesome!!! All of it! The latching, the homecoming, everything!
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    The very last sentance made me cry.  Congratulations mama!!! You are so strong, and you've got one strong little one on your hands.  Way to go Luke!!

    I will continue to think and pray for you all.  I hope this transition goes smoothly!

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    Yep totally made me cry too. So happy for you guys! Hope the transition goes smoothly!
    Me: 35  H: 35
    Married: 4/5/13

    "You know that place between sleep and awake, 
    that place where you can still remember dreaming?
    That's where I will always love you.  
    That's where I'll be waiting."
    ~Peter Pan 

    *TW*
    BFP #1: 11/12/12  EDD 7/25/13 Baby boy: 7/27/13
    BFP #2: 10/29/17   MMC dx @ 9 weeks
    BFP #3: 2/2/18 MC 2/7/18
    BFP #4: 3/2/18  MC 3/9/18
    RPL testing and hysteroscopy: all normal
    BFP #5: 4/1/18 MMC dx @ 14 weeks ----> genetically normal girl  :'(
    Hysteroscopy to remove scar tissue 9/28
    BFP #6 11/5/18 EDD 7/20/19  <3  Rainbow baby girl born 7/23/19 
    BFP #7 12/8/2021 EDD 8/22/2022 
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    Annnd, crying too! So so happy for you!!!!
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    Great news!! Soo happy for you and your family.
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    crying here too. I have visions of you at home with Luke for Halloween, Thanksgiving, Christmas. I picture you taking him to sit on Santa's lap. Having him dig into a stocking on Christmas morning in your livingroom and then of course he sticks the toys in his mouth. I picture you putting your sweet baby in his crib this evening. I'm so happy for you guys.


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    I lost my angels 07/2010, 04/2017, 10/2017

    Meimsx no more
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    Yea! Congratulations! Enjoy being home with Luke!

     

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    This made me cry, happy cry that is! I am so excited for you and your family!
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    :) your post brought tears to my eyes. I'm so happy for you guys!
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    This made me cry too! Once we got DD home from the NICU everything fell into place fast and it felt like she belonged with us. I hope everything goes smoothly bringing Luke home and you learn hid needs quickly and easily. Welcome home, baby boy!

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    The end of your post just made me sob, but they are happy tears! Welcome home!!
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    I am so very happy for you guys. Yay Luke for latching! It will be so wonderful to have him home, I know.
    Mom to three girls and pregnant with #4!
    L: 7/12/13
    C: 5/11/15
    E: 3/7/17
    Due 11/10/18
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    AHHHHHHHHHHHH! This is so awesome! I love this! Congrats mama! It's been a long road for you guy. We are all so proud of how strong you are!

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    I am just thrilled for you! I saw this post title and knew it was about Luke, and couldn't wait to read it. It's as full of as I'd hoped. I am glad you were able to get him to latch. I bet that was one of the best feelings of your life! Giant hugs. I am looking forward to hearing more home stories!
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    Tears here as well! So very happy for your family. Enjoy today's moments. And yay for a latch!

     

     

     

     

     

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    Yay!! I am so excited for your family!  Now I am happy crying at my desk :) 
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    mimi4347 said:
    Tonight, we turn off the porch light for the first time in over four months, because everybody will be home.
    Amazing way to end that post.
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    Yup...you made me cry! I am so happy for you guys, there is no better feeling than bringing home your baby after waiting for so long!
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    Asbromle said:

    Love yout last sentence. It gave me chills :) I'm so happy for you all, so happy.

    This. Congratulations! I know it's been a long road, but you, your H, and Lucas have come through it like champs!


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    I am so happy for you and your family.
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    Tearing up here! So incredibly happy for you. What a huge step forward I can't even imagine how you are feeling right now! Enjoy having that sweet boy home with you. You've worked so hard to get here!

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    I'm so happy for you and your family and I love that you get to turn the porch light off tonight. Congratulations!

     

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    Goosebumps and tears here too! What a blessed thing!

     

    DD1 7/10/08  DD2 8/11/10  DS 7/2/13

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    Cue the tears. Congrats!!!
    Trying for #2 since November 2015

    DS #1 - 7/25/13

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    How fantastic! Happy first night home!
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    So very happy for you, wiping away tears.
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    Clyde013Clyde013 member
    edited October 2013
    That's great news. I'm so happy for you, your H and Luke! I hope it's much easier fro here. You all certainly deserve it.
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    Aw yay! I am so happy for you! I started crying! This is so exciting!
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    Your last sentence almost made me cry. I am so, so happy for you all and will continue to pray that things go well and Luke adjusts well. And your comment about him latching made me want to cheer for you. Hope your first night home went well!

     

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