T&Ps please, I'm scared

pennstated912

Since my medication increase for epilepsy, I've been getting some pretty horrible migraines. I have sensitivity to light, auras, blinding headaches - and the next day, I don't really remember much of the previous day.

I called my neurologist (even though I have an appointment on Wednesday) cause it is really bothering me now.

I'm scared that I may have been misdiagnosed and these may be tonic-clonic seizures. My old neurologist told me that it was complex migraines.

If I'm having seizures, that means my license will be taken away. I've been seizure-free for 21 years. I don't know how I'll deal if they come back and say these are seizures.

I genuinely feel like crying.

MrsGraham06

I'm sorry you're going through this. I hope it gets resolved quickly.

Jackapatamus

Sending t&ps! Try not to worry too much before the dr. Sees you next week. Keep us posted.

jldubb0626

I'll be thinking of you sweetie! *hugs hugs*

moosebaby2011

I'm so sorry. T&P coming your way.

csandroo

Positive thoughts your way that it's not seisures! I hope it works out for you and little one to be safe and happy able to drive around town

sugarland726

Oh how awful. T&Ps for you.

ac1259

T&Ps that you aren't having seizures! I hopefully your neurologist finds out what's going on soon! What you're describing does sound like a migraine though, if anything maybe an absentee seizure but they would definitely be able to tell the difference with an EEG...I hope everything gets better soon!

ach298

Hope you get answers soon. Good luck.

dland0201

Sending positive thoughts. My sister has seizures as well and experiences most of the same things you have described. I know how stressful it can be for her when she is worried about having a seizure and the possibility of her losing her license which just isn't possible for her having 3 children. So as hard as it can be try and not stress about it and hopefully you will get some answers from your doctor soon.

wedbliss5

I'm so sorry - sending thoughts and prayers your way!

bethughknee

Lots and lots of T&P's. I wish you didn't have to wait until Wednesday!

pennstated912

ac1259 said:

T&Ps that you aren't having seizures! I hopefully your neurologist finds out what's going on soon! What you're describing does sound like a migraine though, if anything maybe an absentee seizure but they would definitely be able to tell the difference with an EEG...I hope everything gets better soon!

I don't even care about my license to be honest. I'm worried about the safety of my baby since it is happening so frequently.

I also worry about how I will handle it mentally after believing I was seizure free for so long. I genuinely think I would shut down.

The crazy thing is, this didn't start until they RAISED my medication. I only had one headache the first tri. Wouldn't raising my medication decrease the possibility of seizure, even if I was on too much because my levels would be higher?

I can't deal with this. I'm currently trying to will my phone to ring.

kaydee_2008

Hugs sweetie sending you lots of good thoughts and prayers.

LittleMommaBlueHen

Praying for you! Hang in there!

ac1259

pennstated912 said:

T&Ps that you aren't having seizures! I hopefully your neurologist finds out what's going on soon! What you're describing does sound like a migraine though, if anything maybe an absentee seizure but they would definitely be able to tell the difference with an EEG...I hope everything gets better soon!

I don't even care about my license to be honest. I'm worried about the safety of my baby since it is happening so frequently. I also worry about how I will handle it mentally after believing I was seizure free for so long. I genuinely think I would shut down. The crazy thing is, this didn't start until they RAISED my medication. I only had one headache the first tri. Wouldn't raising my medication decrease the possibility of seizure, even if I was on too much because my levels would be higher? I can't deal with this. I'm currently trying to will my phone to ring.

From what I understand about seizure medications, they are very tricky and sensitive. I think it can be hard to find a balance between too much and too little, plus you're hitting that point in your pregnancy when all the hormones and stuff peak so the combo is probably a lot:( I bet it can be really hard when you've been seizure free. A friend of mine was epileptic and was seizure free for months and all the sudden had a few and it was just such a let down for her, I can't even imagine. Hopefully it's just migraines, which suck in and of themselves, but would be the better alternative, then they can start treating. I hope you get a call back soon!

SunflowersBride

I'm really sorry you are dealing with this!  Hopefully it is just complex migraines that is being triggered by the increase in medication.

cnwilbur1030

Thinking of you! So scary!

sarahmarie2

I'm sorry you're going through this--best of luck with everything!

ashybear

This sounds really scary, and I'm sorry you're dealing with such uncertainty. Sending you so many positive thoughts.

megngregk

I hope everything is ok and you can get some answers today. Don't stress yourself out, you don't know anything for certain yet. Try to calm down and relax a bit. Thinking good thoughts for you.

MiaMyPuggle

I'm very sorry you're going thru this. Hopefully they will get conclusive evidence either way with your next scan. Being in limbo has to be frustrating.
T's and P's to you.

LindsB314

T&p's for you! I hope everything is ok.

Coco1236

Sending lots of prayers and good thoughts your way  

purplepenguin2011

so sorry.  hoping for good news!

pennstated912

I posted a little earlier. Just migraines. They think they raised my medication too fast and the hormones from pregnancy amplified everything. I will take the migraine SS over seizures any day of the week I'm happy with this. Especially since I get to lower my meds.

LadyJ2949

I'm so sorry! Sending you many thoughts and prayers. I hope they can just change your meds and make it stop.  

Ninjafarmerswife

Sending T&Ps that you will get it figured out!

kteeswei

Hope you get answers soon. Migraines can cause everything you described and seems most likely. Thinking of you!

citybeach

Sorry you are going through this Ts and Ps for a positive outcome and some relief for you.

HappyDoc

Sending T&Ps your way, I hope you get some answers soon.

jgraham80

So sorry you're going through this!  Positive thoughts coming your way.

pennstated912

benjaminsmommy16 said:

Praying that it isn't seizures. My son has them and from what I can see, they are very scary. He always seems scared after.

Getting on Keppra and off gluten seemed to help him. (I have no idea if Keppra is pregnancy safe though.)

Keppra is sort of pregnancy safe but Lamictal is the safest and recommended AED for pregnancy

SvedkaStoli

I am so sorry. I hope you get an answer soon. If you don't get a definitive answer, please please get a second opinion.

cyndilouwho77

I am truly sorry you are going through this, I have a niece with severe epilepsy and it breaks my heart hearing of anyone else that is going through this.  I am going to guess that hormones are at play here and not helping the situation =( I hope that they can narrow things down for you and pin point the problem and find an easy fix!  Thoughts and Prayers!