Positive Neural Tube Defect Test

JullianasMommy · July 2013

I just got a call from the Dr and she said the test came back positive for Neural Tube Defect and I need to go in for a more intense U/S then the 1 already scheduled.

Anyone else come out positive for this? I'm a crying mess right now. She said there's still a chance that everything is ok but they won't know until further testing.

74dragonfly · July 2013

See my post below. My baby has a neural tube defect. Hugs.

Tigger & pooh · July 2013

I am sorry. When is your ultrasound. Sometimes it ends up being nothing. Did they tell you your ratio or percentage?

KFiori1 · July 2013

Sorry to hear. Hope it's nothing!

Londonsmybabyboy · July 2013

Wishing you the best. Your ultrasound will provide more information. Try not to stress too much. It is so difficult to receive this kind of news. I'm sorry you both are going through this.

Unknown · July 2013

Hoping the better ultrasound will yield good results. Praying for you and your LO.

mamashan12 · July 2013

I'm so sorry. Thoughts and prayers with you, and I'm hoping that it all turns out to be ok.

JullianasMommy · July 2013

Tigger pooh:
I am sorry. When is your ultrasound. Sometimes it ends up being nothing. Did they tell you your ratio or percentage?

No Dr didn't give me any type of percentage. Should I call back and ask?

BootsOrHearts · July 2013

Did they tell you your ratio? Please understand this does not mean there is anything wrong with your baby, just that the screening test said there MIGHT be an issue. I hope they explained that to you. Please be sensitive to those whose babies have CONFIRMED diagnosis. It's a very sensitive subject for them. I hope your baby is just fine.

mightymousy · July 2013

I'm so sorry :[

Ktrue85 · July 2013

Hoping the US yeilds better results and this was just a scare. I understand as I too went through about 6 weeks of limbo hell waiting for results for possible genetic defects. We ended up having an amnio to confirm and our little boy got the all clear. I will keep you in my thoughts and hope for the same for you.

Tigger & pooh · July 2013

JullianasMommy:
Tigger pooh:
I am sorry. When is your ultrasound. Sometimes it ends up being nothing. Did they tell you your ratio or percentage?

No Dr didn't give me any type of percentage. Should I call back and ask?

You can it may or may not help you feel a bit better. Have you had any bleeding? KateMW had a positive screen and they think it was from a SCH or some other bleeding she had. Of course until the u/s you won't know for sure but sometimes it helps to have something positive to hold onto.

Brandi81012 · July 2013

Postive thoughts coming your way.

notkateanymore · July 2013

BootsOrHearts:
Did they tell you your ratio? Please understand this does not mean there is anything wrong with your baby, just that the screening test said there MIGHT be an issue. I hope they explained that to you. Please be sensitive to those whose babies have CONFIRMED diagnosis. It's a very sensitive subject for them. I hope your baby is just fine.

Exactly this. All of it. I was one who had an increased result on the test and have since found out that the baby does not have a NTD. Also, the increased amount of the chemical that they are testing for could mean a number of other things as well, such as gestational diabetes or can be caused by any prior bleeding you've had during your pregnancy.

okate0213 · July 2013

Hoping you get more answers with the level two u/s. T&Ps

lemlemlem · July 2013

I am sorry you are going through this. My thoughts and prayers are with you. I hope it ends up being nothing.

JullianasMommy · July 2013

Tigger & pooh:
JullianasMommy:
Tigger pooh:
I am sorry. When is your ultrasound. Sometimes it ends up being nothing. Did they tell you your ratio or percentage?

No Dr didn't give me any type of percentage. Should I call back and ask?

You can it may or may not help you feel a bit better. Have you had any bleeding? KateMW had a positive screen and they think it was from a SCH or some other bleeding she had. Of course until the u/s you won't know for sure but sometimes it helps to have something positive to hold onto.

Yes I did have a SCH at 12 weeks. Makes me feel better!! I also have been reading up on the Internet and they say there are a lot of false positives.

I also talked to 1 of my sister in laws because I know she had tested positive for downs with her son. She said not only did the blood test show signs but her level 2 U/S confirmed babies Down syndrome and Dr. even talked over their options. She had him and no signs of downs and now he's 10 and is perfectly healthy with nothing wrong. So that brings so much hope!!

Thanks Ladies!!!