Devastating A/S

74dragonfly · July 2013

Hi Dec Ladies,

I have not posted in a week but I decided to share my sad news in the hopes that if any other Dec ladies have bad news at a/s that they know they are not alone.

At our A/S last Monday they discovered my baby boy has spina bifida, which is a neural tube defect. The Dr was shocked since I passed my 1st and 2nd tri screening tests, NT scan and materniT21 test.

We were immediately set up at the Childrens Hospital for more tests. last week I had a high level ultrasound, amniocentesis and genetic counseling.

This week I go for a fetal MRI.

What we know so far is the hole in spine is covered, which is rare and why he passed the screening. This means his spine is safe from amniotic fluid. But he has a tethered cord, which basically means nerves are fused to the cord instead of being free.

Right now he has grown normally, has great movement, everything else looks great. They don't know what will happen as he grows.

I am so sad and scared. I appreciate any prayers and good wishes.

If any other Dec ladies have bad or scary news I'm here for them. But I hope no one else has bad news at their A/S.

sav34mm50pb · July 2013

I'm so sorry to hear about your scare. I can only imagine all the thoughts and emotions you're experiencing now. Sending lots of prayers and good thoughts your way.... XO!!

mcraig107 · July 2013

I'm so very sorry for your news. I wish you and your baby boy all the best and please keep us updated. I hope he continues to thrive!

lp0 · July 2013

I'm so sorry you're going through this. Sending lots of T and P's your way.

hendsa01 · July 2013

I am so sorry to hear about this. I am sure there are other bumpies whose A/S's were not all sunshines and butterflies and you are very brave to speak up about this situation. My prayers will certainly be with you, your LO, and your family.

jy725 · July 2013

I'm so sorry! {{{Hugs}}}

MamaGrillo · July 2013

So, so sorry. Sending prayers right now for your little family.

MrsC731 · July 2013

I'm so sorry. I can't begin to imagine the emotions you are going through. You are in my thoughts and prayers.

KFED103 · July 2013

Oh no. I'm so sorry to hear this. Hugs to you.

Mills0309 · July 2013

I'm so sorry you are going through this. You, your family, and little man will constantly be in my prayers!

jmb527 · July 2013

Oh no, I am so sorry to hear this

I wish you strength and lots of positive thoughts coming your way. Keep us posted and we are all here for you! Big internet hugs your way!

nicholssquared · July 2013

I am so sorry.

I will pray to Our Lady and St. Gianna Beretta Molla (patron saint of unborn children) to intercede on your behalf and make this diagnosis as mild as possible, and for you to be blessed with a healthy baby in spite of this.

amdftw · July 2013

I am so sorry to hear this. My thoughts are with you and your family.

MamaHanna · July 2013

I am sure that was a shock. I don't know what I would have done in your shoes. Hopefully everything works out and he can live as normal of a life as possible. Thoughts and prayers to everyone !

MEP923 · July 2013

So so sorry. Sending you and your family prayers. Keep us posted.

adawn1981 · July 2013

I am so sorry to hear this. I will be praying for you and your family. Hugs to you.

mamashan12 · July 2013

I'm so sorry you have to deal with this. Big hugs to you and DH. I'm sending prayers and thoughts your way.

I'm sorry if this is an ignorant question, but is there anything they can do now in regards to any kind of treatment?

RanFan28 · July 2013

Oh mamma! I am so so sorry. Please continue to update us as you feel comfortable.

KelseyKetchum · July 2013

Hugs prayers and best wishes your way

MuppetOnBoard · July 2013

I am so sad to read this. Please keep us updated when you're comfortable to do so. Prayers and hugs to you.

thesportsgal · July 2013

I am so sorry to hear this....:( Many hugs, thoughts and prayers to you and your family.

mkarns · July 2013

I'm so sorry. I hope that you all are doing ok under the circumstances. Xoxo

mightymousy · July 2013

Just wanted to give you some more hugs [[HUGS]] I'm so sorry hunny :[

margaerytyrell · July 2013

I'm so sorry. I hope you and your family can get some answers.

rkcaraway · July 2013

I'm so sorry! Sending prayers to you and your family. Please keep us updated.

swirl25 · July 2013

I am so sorry...sending lots of T and P's to you!

mimers07 · July 2013

I am so so sorry you received this devastating news. I am keeping you in my thoughts and prayers. If you're comfortable doing so, please keep us updated on your little one.

TXmamatobe · July 2013

I?m so very sorry to hear about this and will be praying for the best outcome possible! Thank you for sharing with us ? I know this is a scary time.

sleepymonkey · July 2013

I am so sorry to hear this! My thoughts are with you right now! Hopefully you have a positive MRI and your LO has a mild case of spins bifida. If it can give you any sort of hope, I know 2 people that had sons born with sb and through surgery and physical therapy, they are both healthy happy children now (one is 3 and the other is in junior high) and just looking at them you wouldn't even know there was ever an issue.

noslen0519 · July 2013

So sorry to hear this! Thoughts and prayers are with you!

Red_Dahlia · July 2013

I'm so sorry. Many prayers and hugs.

melco19 · July 2013

I am so sorry to hear about your a/s results. It was very brave of you to share the news. I think you are very strong and will be a wonderful mom to your son!!

boston143 · July 2013

I am so sorry that you are going through this. How terrifying and stressful. Sending strength to you and your family and best wishes for the healthiest outcome possible for your LO.