I've been MIA for a bit, but as some of you may remember I was having some bad headaches and dizzy spells for several months and finally broke down and went to the dr who sent me to a neurologist. I had an MRI and CTA scan this week only to find out that I have a chiari malformation of my brain and am being sent to a neurosurgeon next month. Basically, it's where the back part of my brain, the cerebellum, doesn't have enough room in my skull and herniates down into my spinal column, putting pressure on my spinal cord and blocking spinal fluid flow to my brain, which causes the symptoms. Over the last month, the symptoms have got so much worse and I have headaches daily and days where I barely have the energy to get off the couch. It's causing vision problems and a host of other issues. I have another MRI scheduled to see exactly how much my spinal fluid is blocked in a few weeks, which will determine how soon surgery will need to be done. I'm still hoping that somehow another treatment will be an option once I see a specialist, as the thought of brain surgery and an 18 month recovery period is extremely scary with two toddlers!!!! But from all of my research and from what my neurologist has told me, meds do little to help with the condition and my symptoms are progressing quickly, so surgery is looking to be the only option. So, if you ladies don't mind to say a quick prayer in my direction, I would greatly appreciate it! I think I'm still in shock right now and go from crying to absolute denial at the drop of a hat. I definitely wasn't expecting anything of this sort when I went in for these tests! Thank God dh pushed me to have it checked out when he did!!!
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Wow I'm so sorry that you are going through this. Sending lots of thoughts and prayers your way, hugs too! Stay strong and keep us posted.
TTC#1 May 2009- July 2010 on our own with no luck
Started with RE in August 2010, dx with unexplained IF and then finally our 3rd IUI cycle using Follistim and Trigger resulted in our wonderful little man. Born 12/2/11
TTC#2 Never really prevented, but were careful early on as Dr. reccomended
Surprise BFP 12/16/13, started progesterone immediately as first numbers came back low, but betas were good. Progesterone wasnt enough. Natural MC 12/24/13.
Oh my goodness what a shock for you! That is such horrible news to hear. I've been wondering and will be thinking of you in the coming weeks. I'll send up some extra prayers for you!
Holy crap, I am so sorry to hear this! I can only imagine how much of a shock that must be to hear. I hope your symptoms won't get any worse from here on out and that somehow they find a way to help you without surgery.
Please keep us updated and take good care of yourself! Hugs to you.
TTC#1 for 19 months with PCOS and MFI IUI#3 + injectables = BFP!!!! Beta#1-134(13dpiui) Beta #2-392(15dpiui) #1 born December 2011
TTC#2 - Beta #1 -51@10dpo Beta#2 -1353 @16dpo #2 born May 2013
TTC # 3 June 2014 BFP 12-1-14
#3 born August 2015 #4!!!!!!! due June 2017
Wow, I'm so sorry! I will definitely say some extra prayers for you to get all healed up and hope you get some better news Hugs to you and your family.
Thanks so much everyone! I really appreciate it! The waiting to know more is killing me. My next MRI will be the deciding factor on surgery time frame, so until then, I am just trying to keep busy and keep it off my mind, although it's all I think of! But I really do appreciate all the kind words and thoughts and prayers and I will keep you all updated!!!!
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Re: Been a rough week... NBR
TTC#1 May 2009- July 2010 on our own with no luck
Started with RE in August 2010, dx with unexplained IF and then finally our 3rd IUI cycle using Follistim and Trigger resulted in our wonderful little man. Born 12/2/11
TTC#2 Never really prevented, but were careful early on as Dr. reccomended
Surprise BFP 12/16/13, started progesterone immediately as first numbers came back low, but betas were good. Progesterone wasnt enough. Natural MC 12/24/13.
Back with RE as of January 2014...
5/27/14- Chemical Pregnancy
April 2015 IVF#1
5/13/15- BFP, please stick LO!
Oh and I'm a major Harry Potter Nerd
Holy crap, I am so sorry to hear this! I can only imagine how much of a shock that must be to hear. I hope your symptoms won't get any worse from here on out and that somehow they find a way to help you without surgery.
Please keep us updated and take good care of yourself! Hugs to you.
TTC#1 for 19 months with PCOS and MFI IUI#3 + injectables = BFP!!!! Beta#1-134(13dpiui) Beta #2-392(15dpiui)
#1 born December 2011
TTC#2 - Beta #1 -51@10dpo Beta#2 -1353 @16dpo
#2 born May 2013
TTC # 3 June 2014 BFP 12-1-14
#3 born August 2015
#4!!!!!!! due June 2017
Lots of thoughts and prayers to get you through this rough time. So glad DH pushed you to see a doctor!
Keep us updated and know that you have your Bump family to lean on if you ever need anything or want to vent!
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sibling love