Finally! Good news!

Stillharbor · March 2013

LO has Down's Syndrome and a heart defect. We had no clue until she was born then we were hit with ds, AV canal (heart defect), severe acid reflux, and then a milk protein allergy. She is 4 months old but b/s of a lack of weight gain looks like she's 2 months. We just haven't been able to catch a break. Until...

Last week we when to the cardiologist planning to schedule open heart surgery within the next 2 months. Doc did an echo and EUREKA!! The lower half of her heart between the ventricules has closed up and her heart is working more efficiently than it needs to!! The attria is still open , but no. surgery until DD is 9-12 months! HAPPYDANCEJIGBOUNCEFLIPCHEERCRYSCREAMHOOPLA!!!!

vettymama · March 2013

Oh my goodness! That is great news!! My sister in law is 20 years old and has Down's Syndrome. She had open heart surgery when she was 2 months. I'm so happy for your family and your LO!

credcat7 · March 2013

Sounds like you were due some good news and you got it... DS can be scary at first but once you have a minute to breathe I hope you can realize that instead of a sad/stressful thing you can realize you have the opportunity to raise an amazing child who wi