October 2012 Moms

Anyone have experience with aspiration?

I've posted a lot about my guys feeding issues. He literally hates eating and we've spent five long months of dealing with bottle refusal, feeding him in his sleep, etc. We started Prilosec for suspected silent reflux almost 2 weeks ago and it has made some significant improvement in his eating. He still does not like eating but he is now up to taking between 30-34 ounces daily and most of it while awake, which is a big improvement. However, Tuesday we had a Video Swallow Study done on him and it showed that he has immature swallowing abilities and some of his liquid is penetrating his airway when he swallows. He's never had any signs of aspirating, doesn't choke or cough when eating, doesn't sound congested, no history of illnesses, etc.

We've been instructed to thicken his formula to a "honey" consistency using rice or oatmeal cereal, but putting 1 tbsp per ounce of formula. This is REALLY thick and he HATES it. I feel like we are regressing now, because he is back to refusing bottles and he won't even take the thickened bottles in his sleep, so we are really struggling to get ounces down him. He is also filling up quickly on all of the cereal and becoming bloated and severely constipated. I've resorted to giving him him unthickened formula, just to get food in him and he drinks that just fine.

I understand that potential aspiration is dangerous and his formula compromising his airways is uncomfortable, but on the other hand, I feel like we are creating more feeding aversions when we were just starting to get better. The speech pathologist said that most kids outgrow this issue relatively soon, when their bodies become stronger and more mobile and also that treating his reflux could help swallowing to improve.

Part of me wants to just give him the unthickened formula, unless he begins to show signs of discomfort when eating or clear signs of aspiration, but the SLP said that she couldn't advise this, but we could do what we wanted. Our GI almost cancelled the swallow study, because he was doing better and showed no clear signs of aspiration, so part of me wonders how many kids out there deal with this and it goes undiagnosed and they eventually out grow it without anyone ever knowing.

We've struggled so much with eating that I truly can't go back to struggling with bottles and seeing him so unhappy and uncomfortable while eating. But, everytime I give him a normal bottle, which he drinks just fine, I can't help but think that he's hurting because some liquid is going the wrong way. 

Anyway, if you made it this far, thank you! And please, no flaming or criticizing, I'm truly at my breaking point in dealing with my poor guy's eating issues and there is no win either way I go, so please understand that I'm just trying to find a way to help my kid and get us through this. Does anyone have any experience with this, advice, suggestions, thoughts? Thank you again!

M/C #1 - BFP-1/16/08 Dx Blighted Ovum-2/4/08 D&C-2/8/08 @ 7 weeks M/C #2 - BFP-3/31/08 Early M/C-4/10/08 @ 5 weeks M/C #3 - BFP-6/31/08 Early M/C-7/13/08 @ 5.5 weeks Lilypie Fourth Birthday tickers Lilypie First Birthday tickers

Re: Anyone have experience with aspiration?

  • Holy cow! You poor thing. I have no advice but lots and lots of hugs and hungry dust your way!!
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  • I'm so sorry you are going through this.  Hoping you find something that works. 
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  • What did the docs say about purees? I know he still needs formula of course but can you thin a puree down just a little to help get more calories? 
  • No experience, but my goodness this sounds awful.  Hoping you find a solution quickly!  Hugs!!
    image
    DD 11/1/12
    DS 7/16/14
    DD Free from FPIES triggers as of 18 months! 
    Sweet potato, avocado, banana, mango, oats, wheat & rice outgrown.
    Dairy, soy, and peanut allergies outgrown! Allergic to eggs.
    DS MSPI, egg allergy
  • Wow this is almost my exact story! We had our swallow study done around 3 or 4 weeks though. It has been a very difficult few months and breaks my heart that my little guy seems to be the only baby who hates to eat. He has better days than others but most
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  • We have a baby in the same exact situation.  She was diagnosed with Laryngomalacia.  Email me!!  lilycpantaleo at gmail dot com!!
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  • Well as you know, Blake has reflux and the meds have helped, but he's still a horrible eater.  I still put cereal in his bottle (2Tbs per 4oz bottle) and a lot of feedings he only takes 2-3oz during the day.  I'm also sooo frustrated because my

    DS born 9/25/12
    DS #2 due 6/13/16
  • Thank you girls and a HUGE thank you to those who posted and are in a similar situation. I am so sorry that you are also dealing with all of this, as I know how truly stressful and emotionally draining it is on everyone, but I'm also comforted to

    M/C #1 - BFP-1/16/08 Dx Blighted Ovum-2/4/08 D&C-2/8/08 @ 7 weeks M/C #2 - BFP-3/31/08 Early M/C-4/10/08 @ 5 weeks M/C #3 - BFP-6/31/08 Early M/C-7/13/08 @ 5.5 weeks Lilypie Fourth Birthday tickers Lilypie First Birthday tickers
  • suzienickles at gmail.com... Also good to know that another baby only eats as much as my guy. he too only eats about 23 oz each time as well sometimes 4ish if he's asleep in the middle of the night.
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