(Highlighted the main question)
So after 10 months of waiting, we finally saw the neuro for Andrew's (who is 3 1/2) autism screening and I am even more confused now.
With the adaptive behavior assessment he scores a total score of 62 which is low. He scored a 32 on the CAR-S which puts him in the mild-to-moderate symptoms of autism, and on his observation he scored a 0 in communication, and 4 in socialization which puts him below cut off for ASD. At this point this is all the information I have.
They told me he is not on the spectrum, though he displays autistic tendencies. He does have severe sensory processing disorder (which we knew), mixed receptive/expressive language disorder and phonological disorder (which we knew) and they are diagnosing him with disruptive behavior disorder- nos. He also has sleep impairment and possibly a global development delay.
So I guess my questions are these:
1.) What do I do now? He is already in early development preschool under speech and development delays so i know that those don't need to change. We can't qualify for medicaid based on income and my private insurance won't pay for at home occupation, feeding, or parent-child therapy. Does anyone have any experience with The Katie Beckett program?
2.) Does anyone have an experience with Disruptive behavior disorder? Support groups? anything? I have never heard of it until last week and it is still hard not to think it is just an excuse for being naughty.Most things I have found are for parents of teenagers who are already in a lot of trouble. Also, the more I look into it, the more freaked out I get. Please tell me it will be ok and he won't grow up to be a cat killer or something.
3.) What is parent-child therapy?
Sorry I am not around much, but I have no where else to ask and I know you ladies have a lot of knowledge! TIA!
Re: c/p from special needs, help!
I would try googling preschool DBD and your city r county and see if any resources come up. Maybe you could contact your local children's hospital and ask to speak to a social worker. They are usually well connected with community resources. Your Board of Ed and Headstart programs may also know of support groups. I wish I had more help to offer