Lucas's surgery is scheduled for tomorrow, 7/23.
It could take up to 6 hours, and they won't know how much of his bowel tissue is viable until they open him up so the results will determine whether this is an issue for a few more weeks while they rehab healthy tissue or for several more years with a potential transplant down the road.
Needless to say, we're terrified and could use all the thoughts, prayers, and positive energy you can spare. Thanks for the continued support, and I'll update when I can, although I'm not sure when that will be.
FKA mimi4347: diaper rash magician and unofficial expert on excrement
This kid may not have a lot of bowel, but he has plenty of guts!
DS born at 34 weeks with (surprise!) gastroschisis turned short bowel syndrome.
131 days in the NICU, 6 trips to the OR, G-button, daily TPN....
After 1 year, 3 weeks, and 5 days with his girlfriend Ivy we are finally line-free!