Pregnant after a Loss

Update on Baby Boy

Today was a LOOOOOONG day. Left house at 8:30, home around 4pm. 

The baby does have spina bifida. There are positives and negatives to his particular situation. He has a hole in his spinal column at the base, which is the best spot to have it, the lower the better. Also his hole has been closed over by skin, which is rare. This means his spine is protected from amniotic fluid. Both these things means this is a mild case. Bad news: they suspect nerves are fused to the base of his spine. Right now he is fine, great movement, brain looks good, bones look good etc. But as he grows he may not grow normally. They just don't know. 

Because his hole is covered they theorize no spinal fluid escaped which is why he passed the neural tube defect testing (AFP) in the 1st trimester screening process.

I had an amnio done today so they can check the amniotic fluid for a few things. I go next week for a fetal MRI. we also are trying to get in to meet a pediatric neursurgeon. Most babies with SP need surgery with 48 hours of birth to close the hole. Since his closed and protected we may not need surgery until he is a month or two old, which is better. But the big question is what the impact is of this possible nerve issue. The surgeon can tell us these things. 

We are drained. I barely slept last night. The amnio hurt so much. I feel a tad more hopeful but also worried what may occur as he grows in-utero.

I need lots of prayers. This is going to be a long rough road. They still think a week 39 c section is fine. Apparently all SP babies are c section due to  spine. 

I really appreciate your prayers. My baby moves so much, he is moving all the time. I feel like he is telling me to hang in there. 
Thanks you for thinking of us! 

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Re: Update on Baby Boy

  • I want to give you the biggest hug right now. I'm so relieved that this is a mild case, but I wish it wasn't something you have to worry about at all. So much love to all three of you while you get through this. (((hugs)))
  • I can't even imagine. Lots of thoughts coming your way.


    BFP#1: 12/3/13 EDD 8/15/13. Heartbeat found on 12/26/13, HB gone on 1/4/13. D&C 1/7/13.
    BFP#2: 4/19/13 EDD 12/28/13. Team Green for now! We'll see how long we hold out...
    It's a GIRL! 12/21/13

  • Big {{hugs}}

    I'm so sorry you're dealing with this, but I'm glad it seems to be a mild case and that you have good doctors and are developing a plan of action. Hopefully that will bring you some peace in the coming weeks. Continued t&ps. 

    Mr. & Mrs. B, Est. 10.23.2009
    BFP #1: 8/31/12 ~ m/c: 9/06/12
    BFP #2: 2/28/13 ~ EDD: 11/10/13 ~ DS Born: 10/23/13

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  • So many hugs to you. You will continue to be in my thoughts and prayers. I'm glad baby boy has a mild case and it sounds like a pretty great plan is formulating for treatment right now.


    BFP #1 4-10-2012, EDD 12-19-2012, ectopic discovered 5-01-12 at 6w6d
    BFP #2 3-22-2013, EDD 11-28-13, natural mc 4-09-13 at 6w4d
    BFP #3 6-10-2013, EDD 2-19-2014, DD born 2-12-14

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  • Huge hugs and many prayers for you and your little boy. I'm so sorry your going through this.
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  • Sending so many thoughts and prayers to you and your baby boy. :::hugs:::
    BFP #1 1.2.12 EDD 9.15.12 :: mmc 2.22.12. / d&c 2.23.12 :: 2nd d&c 3.16.12

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  • Sending so many thoughts and prayers your way. Huge hugs!!!


    Missing Our July Sparkler
    BFP#1-11/12/12, MMC 1/16/13-baby stopped growing @ 9wks, found out at 13wks, D&E 1/25/13
    BFP#2-4/23/13 EDD-01/02/14 baby BOY born 12/31/13 Michael Cameron <3

  • Lots and lots of hugs. I'm so sorry you're going through this, but I'm glad to hear that it's a mild case at least. Sending vibes for lots of strength over the coming months.
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    D: Born 7.14.11
    Baby #2: BFP 9.19.12, EDD 5.24.13, natural m/c 10.19.13 at 9w
    O: Born 3.2.14 (med-free!)
  • The worrying thing is if as grows the nerves don't grow properly. It is a huge unknown.

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  • Huge (((hugs)))

    I'm so sorry you are going through this. Sending you and your LO tons T's&P's. 

    TTC since August 2011
    BFP#1 3/16/12 EDD 11/21/12 Delivered 6/1/12 at 15 weeks 2 days
    "If there ever comes a day when we can't be together... Keep me in your heart, I'll stay there forever." ~ Winnie the Pooh

    BFP#2 4/14/13 EDD 12/24/13 Please be our rainbow after the storm!
    Beta#1 @ 15dpo 274, P4 16.9 Beta#2 @ 18dpo 940!! Doubling time of 40 hours!! u/s @ 6w2d showed a beautiful HB of 120! u/s @ 10w1d HB 174!! Grow, LO Grow!! Found out 7/22 we are TEAM BLUE!!
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    Sending you so many hugs. This is just so terrifying and I can't imagine how you and YH are feeling right now. I'm glad to hear its a mild but I'm so sorry you are going through this at all. Keeping you, YH, and LO in my thoughts and prayers.

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  • ZAngelZAngel
    Eighth Anniversary 5000 Comments 250 Answers 500 Love Its
    I'm so sorry you are going through this.  Sending lots of prayers to your family!  I really hope everything turns out to be okay.
    BFP #1 (DS, 10/98), BFP #2 (DD, 10/09)
    BFP #3 -mm/c @ 7wks, discovered at 9wks, D&C 9/28
    BFP #4 5/29 EDD 2/9 - please be our rainbow
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  • Wow- that is a lot to soak in! I am so sorry you are going through this but am glad it is a mild case. Biggest of hugs to you, hun <3
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    BFP #4 5/4/13-EDD 1/19/14- grow little one, grow!
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  • I am thinking of all of you. I can only imagine how terrifying this is.
    Mommy to Alden, born May 19, 2007 - best birthday present ever! natural m/c October 20, 2008 at 8w1d BFP April 4, 2009! Missed m/c discovered May 1, 2009 D&C May 12,2009 BFP March 3, 2010 Chemical pregnancy BFP May 25, 2010 Elias Derek born January 26, 2011! Surprise BFP October 24, 2012 Missed m/c confirmed Nov 26 D&C Nov 30 Surprise BFP February 13, 2013
  • I'm glad you got some better info. I hope it's a very mild case. Deep breaths, you will get through this just take it one step at a time. 

     Huge hugs  

    **Warning: Losses and living child mentioned**
    BFP#1 1/31/12, EDD 10/6/12 Harrison Gray born sleeping @ 18w6d. You changed our lives little guy.
    BFP#2 EDD 10/29/13, C/P 2/25/13, Bye little Ish, we barely got to know you.
    BFP#3 EDD 12/21/13, Baby Boots born 11/23/13 My rainbow baby!

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  • I cannot imagine what you must be going through right now. Sending strength and hugs.
    4 IVF, 2 FET
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    September 12, 2012- m/c 2

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  • I'm so sorry you are going through this.  Lots of hugs, thoughts and prayers to you, your lo and your family.


    BFP #1 2/1/13  m/c 2/8/13
    BFP #2 5/31/13 EDD 2/9/14 E born 1/2/14 at 34+4

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  • So many hugs, KK. He most definitely is telling you not to worry and that he is going to be ok! I am glad you have some answers but so sorry you're going through this. 
    MC 4/09 at 6w2d 
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    CP: 1/28/2012 
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    Ectopic: 6/25/2012 MTX 07/03/12
    CP 11/24/2012 
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  • So many thoughts and prayers headed your way! Glad to hear this could be mild and that you are trying to stay positive. Get some rest for you and baby!!
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  • (((hugs)))
    BFP #1 3/27/10 - mmc discovered 5/20/10 at 11w2d - d&c 5/21/10
    BFP #2 11/6/10 - EDD 7/19/11 - Beta #1 @ 13dpo, 104 - Beta #2 @ 20dpo, 3400s
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  • I am so sorry you're going through this, but it is good to hear that the case is mild. Sending lots of T&P to you and yours, along with lots of great big {{{hugs}}}. Will be thinking about you!!

    TTC #1 since 09.2009

               BFP #1 01.17.11 * Heard HB 02.10.11 * MMC * D&C 02.21.11 @ 8w

                    BFP #2 05.29.11 * Heard HB 06.15.11 * MMC * D&C 06.24.11 @ 7w5d

    BFP #3 05.26.13 * EDD 02.04.14 * DD born 01.31.14

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  • ((HUGS)) Many T and P's for you and LO. Stay strong!
  • Im so sorry you are having to go through this, but I am glad it is a mild case. Sending lots of thoughts and prayers for you and baby!

    TTC since April 2012
    BFP #1 9/26/12 EDD 6/7/13 MC at 5w2d on 10/6/12
    BFP #2 1/18/13 Baby Boy born 10/2/13!

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  • km_mdkm_md
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    Lots of ((hugs)) and T&Ps coming your way. I'm glad that it seems to be a mild case, but I cannot imagine what you must be going through right now. Keeping you in my thoughts.
    Married my own Prince at Walt Disney World Resort on September 9th, 2010 
    BFP#1 - 25/Aug/12 - EDD 2/May/13 - M/C - 08/Sept/12 - 6w2d - Never in my arms, forever in my heart <3
    BFP#2 - 13/May/13 - EDD 25/Jan/14 - Evelyn born January 27th 2014 

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  • Thinking if you and your sweet boy. 

    BFP #1 4/10/12 D&C 6/5/12@ 12.5wks EDD 12/17/12
    BFP #2 9/10/12 CP 9/19/12@ 5.5wks EDD 5/21/13
    BFP# 3 12/3/12...Lukas James born 8/15/13
    BFP# 4 8/4/14 EDD 4/13/15

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  • I want to give you major hugs!
  • So many (((HUGS))) for you. I'm so sorry you're having to deal with and worry about this. 
    BFP #1   8.29.12   EDD 5.8.13   MC 10.9.12   GusGus
    BFP #2   7.12.13   EDD 3.24.14   MC 7.26.13   Muggle
    RE Consult 8.22.13 for RPL testing
    Diagnosed with Factor V Leiden and MTHFR 
    IUI #1 10.11.13 w/gonal-f and ovidrel   BFP #3 & CP 10.25.13   Dot
    IUI #2 12.9.13 w/gonal-f and ovidrel   BFP #4 12.18.13   EDD 9.1.14
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  • ::hugs:: I am relieved to hear that it is only a mild case, but I'm sorry that you're going through this.
    FWIW I have a cousin who has spinabifida, she has had a shunt in her spine all her life and she is perfectly happy, active, and healthy 17 year old. Her older brother also has it but he had a mild case and so didn't really need the shunt, and he is in his early 30s now.
    I really hope you get some rest tonight.

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    BFP#3 8/19/13 EDD 5/3/14 Nerdling was born 4/29/14, welcome little one!
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  • I'm so sorry you are going through all this!! I will keep you and your family in my T&P!!! Many hugs for you!!!! *HUGS*

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    BFP#1 2/5/13 - EDD 10/11/13 - MMC@8wks - D&C 3/7/13
    BFP#2 7/10/13 - EDD 3/21/14- Eli's Here!!

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  • So many Ts and Ps for the 3 of you. {{{big hugs}}} 

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