Parenting

losing my mind

I'm at a loss as to what to do anymore. My DS#2 has been extremely fussy pretty much his whole life. He spent his first 10 days in the NICU, and within a few days of being home has these bouts of inconsolable crying that would last hours. He'd arch his back, gag, etc. He was started on reflux meds. After a few days he seemed much better. After a few weeks he was back to the nonstop screaming, arching, congestion, etc. After 3 calls to the pedi and 2 appts, they upped his reflux meds. Again good for a few days, then the symptoms returned. Called the pedi again, long story short they said there was nothing they could do, got annoyed, tried Nutramigen formula (per rec of a friend who is a NP).

The nutramigen was like a miracle for about 2 weeks. Then again he's back to the nonstop screaming. I can't take it anymore. I feel like anytime he gets a little better, it lasts for a few days, then we're right back where we started. I'm at a loss. My 2yo runs wild all day because I'm constantly trying to soothe the baby. I don't feel comfortable taking him to the park, pool or anything because I feel like I can't keep a good eye on him.

I have an appt with the new pediatrician the 1st week of july, but I don't know if there's anything I can do in the meantime. I'm ready to lose it. My 2yo is napping, the baby is surprisingly quietly in is swing and I'm sitting here on the verge of tears. I've called my old pediatrician about him like 1-2x a week for the past month and every time they tell me his reflux meds are at a therapeutic dose and there isn't much else they can do. So So So frustrated. I just want my poor baby to feel better. And to be able to spend some time with my 2yo. I feel like he's always getting pushed aside. :-(

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Re: losing my mind

  • What meds is he on? Some babies do better with prevacid vs zantac and vice versa. I'm not a reflux expert, although DS has it. Zantac works for him.

     

    Have they tested his diapers for blood? Does he have any rashes, flaky skin patches, stringy or mucousy poop?

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  • Have you seen a GI specialist? There is a solution out there, most likely. Don't stop because your pedi says there is "nothing they can do".
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  • I'd ask for a med change, and probably also a referral to a pediatric GI for a workup to see what's going on.
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  • Oh gosh im so sorry!  First of all, I second what Kiraliz said, dont take no for an answer.  see if you cna get a referral like Boston said.

    As far as your mental health goes, you need some time away from the screaming baby, and probably just with you and DS1.  Im sure he's totally fine, but i think itll make you feel better to have that 1 on 1 time.

    Im so sorry youre going through this. 

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  • My son was very similar. Thankfully, our pedi was quick to react. You need to see a pediatric GI specialist. Ask your pedi GI about changing formula to elecare. We went through lots of testing and finally found my son had 3 ulcers caused by a milk allergy when he was 3 months old.
  • image BostonKisses2:
    I'd ask for a med change, and probably also a referral to a pediatric GI for a workup to see what's going on.

    All of this.  My DS1 had awful reflux and only responded to a high dose of Prevacid and we had to literally load his bottles with rice cereal to keep him from spewing up half of every feeding.  If your pedi isn't making any recommendations then I would definitely try seeing someone else and/or a pediatric GI.  Hopefully this new pediatrician will be more proactive than your current one! 


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  • image kiraliz2:

    What meds is he on? Some babies do better with prevacid vs zantac and vice versa. I'm not a reflux expert, although DS has it. Zantac works for him.

     

    Have they tested his diapers for blood? Does he have any rashes, flaky skin patches, stringy or mucousy poop?

    he's on Zantac. His current pedi was reluctant to even prescribe that. I asked about a med change, a GI referral and they just think he's fine. No testing or anything. Every time I bring him into the pedi he's happy, so I think they think I'm crazy. That is why I am in the process of switching pedis. Would you call the new pedi and ask for a "sick" visit before our first scheduled appt?

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  • Look into your insurance. Some plans don't require a referral for a specialist. If yours doesn't, take matters into your own hands.
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  • image emriley84:
    image kiraliz2:

    What meds is he on? Some babies do better with prevacid vs zantac and vice versa. I'm not a reflux expert, although DS has it. Zantac works for him.

     

    Have they tested his diapers for blood? Does he have any rashes, flaky skin patches, stringy or mucousy poop?

    he's on Zantac. His current pedi was reluctant to even prescribe that. I asked about a med change, a GI referral and they just think he's fine. No testing or anything. Every time I bring him into the pedi he's happy, so I think they think I'm crazy. That is why I am in the process of switching pedis. Would you call the new pedi and ask for a "sick" visit before our first scheduled appt?

    If my baby was in pain, then yes. 

    Do you baby wear at all? That saved my sanity when DS was small. He was a super fussy baby (reflux and MSPI) before we got his meds and formula figured out. It also keeps them upright which helps.

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  • image krptcmschfmkr128:
    Look into your insurance. Some plans don't require a referral for a specialist. If yours doesn't, take matters into your own hands.

    Good to know, thank you. I will definitely look into this.

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  • Oh, and just know that you aren't alone. I was going BSC during the newborn stage and I didn't have a toddler to deal with too. Hang in there mama.
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