Special Needs
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Medicaid

I had a meeting at the bureau of developmental disabilities and I was discussing how I was going to get Grants medicaid switched from income based to disability since my husband recently got an additional job.

She told me not to get on medicaid disability but instead fill out a DW9 or DWZ form. She said that medicaid disability would mess with SSI income. I told her that we were denied SSI due to our assets. She told me that SSI is based off of his disability and not our financial situation and not that many people know that.

She told me to reapply for SSI when I get my paperwork from the bureau of developmental disabilities back.

I am so confused. Does it sound like she knows what she is taking about? Anyone familiar with Medicaid DW9 and DW Z forms? I'm in Indiana.


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Re: Medicaid

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    I am not familiar with the DW9 & DWZ forms that you are saying, but from my knowledge it's medicaid waivers which are based off of the disability & the CHILD's income not the parents income/assets.  

    P used to have SSI before we moved back to VA and then H's job had over time so we lost it (in fact we are still paying it back).  So we switched her to a waiver which took her diagnosis and her income into consideration to keep her medicaid.

    As far as I know every state has income and asset limits on the SSI.

    I wonder if she really didn't know what she was talking about, what state are you in?

    Here are some helpful child SSI links:
    https://www.ssa.gov/ssi/text-child-ussi.htm
    https://www.ssa.gov/ssi/text-income-ussi.htm
    https://www.ssa.gov/ssi/spotlights/spot-deeming.htm 

    DD1(4):VSD & PFO (Closed!), Prenatal stroke, Mild CP, Delayed pyloric opening/reflux, Brachycephaly & Plagiocephaly, Sacral lipoma, Tethered spinal cord, Compound heterozygous MTHFR, Neurogenic bladder, Urinary retention & dyssynergia, incomplete emptying, enlarged Bladder with Poor Muscle Tone, EDS-Type 3. Mito-Disorder has been mentioned

    DD2(2.5): Late term premie due to PTL, low fluid & IUGR, Reflux, delayed visual maturation, compound heteroygous MTHFR, PFAPA, Bilateral kidney reflux, Transient hypogammaglobulinemia, EDS-Type 3


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    I am in the same state and my OT said something about Children with Special Healthcare Needs..not sure if that was SSI though or not. She was just saying how I could get the non covered 20 covered by Medicaid I think. Said the paperwork is long and hard, but it sets them up based on the child's needs and income.
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