Ds #2 is 9 months old. Two weeks ago he had a low grade fever and started making movements with his arms ( both sort of tremor-ed) and his eyes would roll back. The "episodes" would last for literally 2-3 seconds and were very sporadic, having maybe 3 the first friday. Long story short, I took him to the ER and he was admitted for two nights to run two EEG's and an MRI. The 24 hour EEG showed up being abnormal, while everything else looked fine. They said he has reflex epilepsy and gave us a script for Keppra.
I feel like a crazy person since we have yet to have our first appointment with his neuro dr. In the meantime Ive probably put in 4 phone calls since we've been home to speak with their nurses. His "seizures" ( feels weird calling them that since they last two seconds) have gotten worse. They are still the same short seizures but he has upwards of 15 a day, if not more. I feel like the keppra, which is now up to 2.5 ml twice a day is doing nothing. I was told to keep it at that dosage and wait til we meet his dr in a week. I've called and asked to get an earlier appointment if something opens up, but in the meantime I feel so hopeless for my baby. The keppra has done nothing, but I am supposed to keep him on it for another week, and that seems so odd. I have a million questions that DH and I have written down over the last two weeks.. the stress of all the whys, whats, and who knows are quickly building. Top it all off with us moving in less then two weeks.
I know I have never posted on this board, and I am sorry to through my pity party out there. Just looking for any support from other moms that have been through something similar with seizures/epilepsy.