Special Needs

Helmet- not sure if this belongs here..?

So I am not sure what board to post this on ...  so if I am totally in the wrong place I AM SO SORRY! 

but my son has torticollis and brachycephaly and we are getting his Boston Band helmet tomorrow. He is typically a sweaty sleeper so I am definitely worried about potential rashes or overheating..experience? Plus were just hitting the hot summer months too- so that wont help!

We are also in the process of transitioning out of a Rock and Play in our room to his crib in his own room! for the past 3 nights he went from not having it... to spending an hour awake and ALMOST falling asleep... to sleeping 930-130am last night (caved and brought him back in after 20 minutes of fighting it)... slow but steady! Did you LO's have any adjustments with the helmet and sleeping? I am worried that crib and helmet may cause for a few bad nights.. and I want to make this easy on him.

Any advice that you have for our first week with it - cleaning, giving breaks - (should i start slowly introducing it?)- anything you can think of :)

 Thanks in Advance! 

Oh and he's 5 months old tomorrow (happy 5th months present right?!)  

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photo 84a2920e-2954-4acf-9275-ad8708055b12_zpseb05b8cb.jpg

Me and DH - 26years old; IF DX: PCOS, Hypothyroid/Hashimotos(me)
IVF #1 April 2012- 15 ER (4/13), 13 Fertilized, 1 transfered (4/16), 3 frozen
Beta #1(4/28)-127 Beta #2(4/30)-301 Beta #3(5/7)-5570!!
First ultrasound showed 1 strong little heart beat! (5/25) 7/16.. ITS A BOY!
Brayden Nicholas Born Dec 29 2012 - 7 lbs 10 oz 20 in
Baby Birthday Ticker Ticker

Re: Helmet- not sure if this belongs here..?

  • You're certainly welcome here.

    I have no helmet experience, but I know from sleep training, that "caving" probably set you back to square one and will make the whole process harder on both you and baby.  

    It might make sense, to go back to whatever worked for a couple weeks while he adjust to the helmet before trying to change him to the crib. If you are sleep training, please read Ferber so you have a framework you can understand and follow. We did sleep training at about 5 months, which is an ideal time to take it on. Older kids are tougher, littler ones aren't as able to self sooth.

  • My son wore a DocBand from CranialTech for six months.  Your office will most likely be giving you directions on how to introduce the helmet.  Most offices have you take breaks every couple of hours the first few days to check for rashes and raw spots.

    We cleaned our helmet daily with rubbing alcohol.  Your LO will adjust to the helmet over a couple of days and start sweating less.  (Although the helmets can still get rather sweaty and stinky in the warmer months.  Ours wore his through the summer in Phoenix.  It's survivable.)

    We honestly had more trouble transitioning out of the helmet rather than into it.  The kids get used to thinking of their heads as invulnerable.  :)  (Be careful of head-butts from your LO.  Ours split my lip twice before I learned my lesson to stay clear.)

    Please feel free to PM me with any questions about our experience.

     

    Also, one other comment on your LO's torticollis... I strongly encourage you to consider having him assessed by a PT if you haven't already.  Torticollis can contribute to delays in milestones like sitting, standing, walking.  In some cases it can also contribute to speech issues later on.  (We've been through all that with our little guy.)


    Steph

     

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    Lilypie - Personal pictureLilypie First Birthday tickers

  • Thank you both! 

    My chest / chin will probably suffer the most as he typically does the shy guy head butt while laughing when someone talks to him when hes in my arms.... Maybe I should get my own- or atleast borrow my husbands hockey helmet.. lol

    Not sleep training just yet- he has been amazing about waking to eat 2x a night (really morning at 3 and 530) and goes back down perfectly. Once he is able to start foods i think he will go through the night no problem.

    I know i am horrible at caving but it is so hard when your tired... I work full time and thats mainly the reason we started on the long memorial day weekend... I had hope! :) He has done amazing since Friday and I hope it continues.

    I actually stopped swaddling like 2 weeks ago and he was perfect with no adjustment period. PT recommended to try it in his crib (a loose swaddle) to see if that helps with the startle...

    Willing to try anything and everything- I would never be able to handle the ferber method.. gentle shushing and rocking with my hand on his belly seem best - i do good about not picking him up... I know they will learn to soothe but it just breaks my heart! (as every other mom too im sure! :) )

    Thanks for the advice ladies!  

    photo ecba2e48-bd74-4395-8ca1-47ae6b5df68a_zpsfd491ced.jpg photo 5d7e0910-4031-45ed-a61f-09e4245b7ac6_zps1b85690c.jpg photo 341b9e4e-8eea-4939-9d55-a1c1cf07a00c_zpsa176d7dc.jpg

    photo 84a2920e-2954-4acf-9275-ad8708055b12_zpseb05b8cb.jpg

    Me and DH - 26years old; IF DX: PCOS, Hypothyroid/Hashimotos(me)
    IVF #1 April 2012- 15 ER (4/13), 13 Fertilized, 1 transfered (4/16), 3 frozen
    Beta #1(4/28)-127 Beta #2(4/30)-301 Beta #3(5/7)-5570!!
    First ultrasound showed 1 strong little heart beat! (5/25) 7/16.. ITS A BOY!
    Brayden Nicholas Born Dec 29 2012 - 7 lbs 10 oz 20 in
    Baby Birthday Ticker Ticker

  • I hope it goes well for your little guy!
    Both of my little girls are in helmets for plagio/brachy. They are warm natured girls, so I dress them lightly for the evening and have their fan on low to help. Be prepared for a stinky helmet! We have Starbands. I attack them nightly with a bottle brush and mild dish soap, then wipe with rubbing alcohol and they aren't too bad.
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  • Hi - we just finished up with our helmet after 3 months on. Honestly she transitioned so smoothly that sleeping patterns were barely interupted. You ease into the helmet over the course of the week. It's probably harder on you than it is on them. I didn't have many issues with stinky head and we typically used the alcohol wipes daily. The first weeks are the best for seeing great results then it may slow a bit (or at least that is how it was for us). You see a lot of change during growth spurts as well. Blingyourband dot com (or facebook) had a lot of great decals if you are the type who wants to decorate it. I second the evauation by a physical therapist about potential torticollus. We did and it helped her so much. She caught up quickly with help from them and I felt like it was a wholistic approach to her issues. Good luck!
    My little buttercup has the sweetest smile.OMFG I cannot get a signature to work. Image and video hosting by TinyPic
  • Hey there!  I dito what the PP have said- they should give instructions etc. If you have any other questions, feel free to PM me- we are going on 6 months in our helmet and have a Tort diagnosis, among other things.  I would be glad to share anything I could that might help.  Several ladies on here have been a saving grace for me!!  Good luck!!
    TTC with Endo-DX-10 yrs ago
    IUI#1-April 2010- Clomid 100mg, Ovidrel and timed intercourse= BFN
    IUI #2- Cancelled due to cysts
    IUI #3- June 2010- Clomid, Ovidrel and timed intercourse= BFN
    Break due to DH deployment
    Lap #7 Dec 2010- this time my Colon was adhered to my abdominal wall
    Since the start of our journey, new issues along with original Endo, 3 MFI unexplained, Cervical Stenosis, AMH .08, Low AFC, 2 blocked tubes
    IVF #1 - ET 09/18-Transferred 2 Embryos
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