I never posted an official birth story for DD because I guess I just wasn't ready to talk about this but DD was diagnosed with a tethered spinal cord at birth. She is fine and has no deficits from the tethering at this time. We had no idea due to the fact that it usually doesn't show up on u/s. The only reason they knew was because she was born with a sacral dimple with a skin tag( which is a telltale sign of tethering). She has her MRI the end of May and her surgery to release the tethering is mid-June.
Surgery is the only option and as the date gets closer I am getting more and more nervous. I've read a lot online and the neurosurgeon was great but I'm just wondering if anyone has any personal experience with this. Its just so hard to imagine her having anesthesia twice and the surgery; she's just so little .