May 2013 Moms

The baby does have spina bifida

I just got back from the perinatologist. When I first got there they did a long ultrasound. The baby wasn't really cooperating very much. But they did see the "bump"that they called it. The Dr. said it was low but couldn't say exactly where. The Dr. said the baby has the classic lemon and banana signs in the brain. The baby's legs were moving but he didn't know if that is involuntary or not. They did an amino. I didn't get much time to think about it. It happened really fast. The Dr. said it will check for chromosomal abnormalities and he said it would see if the fluid from the spine is leaking (I think, something to that effect) to see if it is open or closed. He thinks it is open. We will wait for the results, then he will make the referral to the neurosurgeon. He said they may do a fetal MRI but maybe not depending on what the neurosurgeon wants to do. He said the baby will have surgery after he is born. They will transfer him to the Children's hospital in Omaha. He said I still see my regular OB and see him also. I have gestational diabetes so they will keep an even closer eye on me. The Dr. was nice. I am 18 weeks 6 days so it seems there are a lot of unknowns. The baby is definitely a boy. His name will be Logan
. I feel at peace now that I know what it is. I have this sense of calm. Of course this isn't the news I wanted. But I already love this baby so much. I want to get to know everyone else more on here. I can't thank you all enough for what you have done for me so far!!! Any other resources you can point me to? Do we have any facebook groups or anything? I am thinking of starting a blog. Just to keep track of my thoughts and baby's progress. I don't know.
Sorry for the rambling. Trying to think of everything the Dr. said.
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Re: The baby does have spina bifida

  • I'm so sorry to hear this news.  I can't imagine what you're going through.  I'm sending thoughts and prayers for you, Logan, and your family.  At least you know that the doctors are there to work with you every step of the way and you can have a plan in place to get him the best care when he is born.

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  • I am so sorry you have to go through this. My prayers are with you and your family

  • Wow, you sound so strong.  I am sorry you didn't get the news you wanted, but I am very glad to hear the strength and love in you message.  Prayers for you family.
  • Stay strong! I'm so sorry you are going through this but you seem to be handling it with such poise and grace. I think a blog is a great idea :)

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  • I'm so sorry you were given this diagnosis.  It sounds like you have a great team looking out for you and your LO once he is born.  Many thoughts and prayers and continued strength to you and your family.

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  • I'm sorry for your news but so glad to hear you know what is wrong now.  You are a wonderful person for having the attitude that you do! All too often people get news like this and have only terrible things to say.  You are an inspiration!  I would definitely say start a blog! I am sure others would find some comfort in the knowledge you will gain in the coming days!
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  • Indeed, a very strong mommy! I am sorry for your news. Please keep everyone updated. My thoughts and prayers are with you, your family, and sweet Logan. 
  • Oh a big squeeze for you, Logan, and the rest of your family and huge kudos to you as you seem to be so positive!  Children's in Omaha is wonderful.  I hope that they are able to help you with resources and caring for your sweet baby Logan.  
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  • I'm sorry you are going through this :( One of my very good friends has spina bifida and has one of the worst cases. She has 4 beautiful children (biologically) and a wonderful husband who adores her. She has a great supportive family. Logan can overcome this and be a healthy happy child with your support :) T&P that its not a serious case. 
  • I'm so sorry. You do sound incredibly strong, which is definitely what Logan needs. I hope the doctors are able to determine the full scope of what they're dealing with quickly. I've heard that spina bifida can often be corrected in utero, so I will keep you, Logan and the rest of your family in my thoughts and prayers. (((Hugs))).

    There is a facebook group, although I can't remember the link or where it's posted. There are some threads about it if you scroll back through the posts. It's probably quite a few pages back.  

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    Wow, you sound so strong.  I am sorry you didn't get the news you wanted, but I am very glad to hear the strength and love in you message.  Prayers for you family.

    I agree. You sound very strong, it is inspirational! T&P to you and your family.


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  • I'm sure that it is not the news you wanted to hear, but knowing will help you to better plan and prepare . ...

    How far away will you be for delivery from the children's hospital where he will be transferred?
  • I'm sorry for your news but you'll be in my prayers...


    And I love the name Logan. 

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  • I'm so sorry to hear this. I'll keep you in my thoughts and prayers.

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  • Oh wow.  Sorry to hear of the diagnosis.  As with most things, there's a great range of severity with spina bifida - hopefully he can finish developing and end up on the lesser end of the spectrum.  Also, it sounds like your perinatologist has a plan of action, so that's a good thing.  I'll be thinking of your family & baby Logan in the weeks to come.  Please keep us updated!

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  • Your outlook is amazingly inspiring. My heart goes out to you and your family...  thoughts and prayers that all works out as well as it can. He's lucky to have such a strong mama 
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  • So sorry you're going through this. :(  Good thoughts to your family.
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  • I am so sorry you and Logan are going through this, too, but I am also glad you found peace in having answers. I used to work with a man who had spina bifida and I believe he was very active in a local spina bifida association. I am sure you have been directed to resources and support groups through your OB, and I want to encourage you to follow up on them because you really do need the support. Also, please PM me if you ever need an ear to listen or shoulder to lean on. I am sending you a giant old fashioned cyber-hug...((((HUGS))))

  • I am sorry you received this news.  Thoughts and prayers to you and your family.  A blog may be a great way to connect with others who have experienced the same and share your strength with others who will.
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  • I'm so sorry for your news. I will be praying for you, Logan, and your family. I'm glad your at peace with the circumstance. Starting a blog sounds like a great idea! Sounds like you have some good doctors that will give you all the attention you and your lo need right now. Stay strong and good luck!
  • Prayers for you!
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  • I am so sorry that you got this news.  It sounds like the doctors have a good plan for you and Logan and I'll be praying for all of you.


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  • I'm so sorry that you received this diagnosis.  Thoughts and prayers for you and Logan.  It sounds like you have a very level-headed attitude, and it's wonderful that Logan has good doctors and a plan of action already being put in place. 


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  • I am so sorry and am sending you and your family T&P's.  Baby Logan is so lucky he is so loved!
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  • So sorry to hear this. Lots of good thoughts for you, your family, and Logan. 
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  • I'm so sorry to hear this ): I'll be praying for you, baby and your family. I love the name Logan.
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  • I am sorry you are going through such a tough time right now. I wish you all the strength you need. You have the information and  the doctors will do everything that needs to be done. I will keep you and family in my prayers. 

    EDIT Most importantly, Logan is a great name and congratulations on a baby boy.  

  • Sorry to hear this, but grateful that you are feeling some peace with it all. Lots of T&P headed your way. Wishing you strength this new year and all throughout. 
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  • Thoughts and prayers for you, your family and Logan.  Please do keep us updated so we can help support you. 

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  • Prayers for you, baby Logan and your family. I think starting a blog would be a great idea - it will help you get some of the information, your thoughts, your emotions, etc out of your head...writing can be very helpful in processing everything. 
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