After lurking for a couple of weeks I decided to finally post . My ds was born at 28 wks 4 days after a high risk pregnancy. He has been in the NICU for 7 weeks now, and just last week after a routine head ultrasound doctors found that he suffered a brain injury called peri ventricular leukomalicia (affects motor skills). the neonatologist said that his injury is significant, but not severe and that he will be have limited use of his left side since injury is on his right side of the brain. My dh and i are devastated by the news and don't know what to do. The day we got the news the physical therapist wanted to let us know how well he did during their session earlier and was surprised by the findings as she stated that at this point he seems to be doing well, not favoring one side over the other, not stiff, etc.
My world is falling apart knowing that he will have difficulties in the future. I guess I was at peace with knowing that my preemie would be behind his peers, but now this changes everything.
Anyone else with the same or similar problem? I know doctors can't tell what to expect but my heart is breaking for him thinking that he will be special needs.