I've been lurking for some time and now that I've got a diagnosis I thought it was time to share
I'm 29 - about to turn 30 in 3 months, and went off the BCP in March after taking it regularly for almost 10 years. I went to my regular OBGYN in June for a checkup because I never got my period after stopping the pill. A blood test showed my prolactin levels were elevated (80 when they should be under 30). After more follow up bloodwork that showed elevated levels again, I had an MRI of my pituitary gland.
I've got a small 3mm microadenoma tumor on my pituitary - or a prolactinoma - causing elevated prolactin thats preventing me from ovulating. I saw a RE for the first time last week and he put me on bromocriptine (Parlodel) that should hopefully lower my prolactin and make me start ovulating again.
He did an ultrasound at the appointment and everything looks ok - except that I have "polycystic appearing" ovaries. I don't have any other symptoms of PCOS so my RE isn't too worried about that right now, he wants to see if my period comes back in two months with the medicine.
Its been a pretty stressful few months, worrying about this "tumor" and whether I need surgery and now this possible PCOS issue. I'm trying to relax and not worry about anything until I've been on the bromocriptine for a few months.
Anyone else have a prolactinoma or elevated prolactin? Did you respond well to the mediciation? I was taking 2.5 mg at night right before bed, but I just increased the dose to 5 mg. I get a little dizzy, especially if I wake up during the night, and seem to be more tired usual, but no more side-effects than that.