2nd Trimester

Anyone choosing to not have any tests done?

Such as the NT scan, or blood work tests for Downs and Spina Bifida? I have heard of there being a lot of false positives, (my sister had a false positive) and I just wouldn't want to worry for no reason. We were so worried about my sisters, they thought that her little girl could have spina bifida, and she was fine! Our percentages for downs was low based off our age and family history, and I would never terminate my pregnancy if I did find out something. And my doc said that they would usually catch something by the time I would be 20 weeks along anyway based off the ultrasound. So, I don't think I'm going to have all of them done. Does anyone else feel this way too?
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Re: Anyone choosing to not have any tests done?

  • I didn't do any of the tests.

    I was only offered the quad screen but after researching it, I decided it's answers were as good as me guessing. And because if it came back positive or highly-likely of something, they would generally want to do an amnio to be sure, and I would refuse an amnio anyways. 

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  • We're expecting twins and did not opt to have any of the testings done. We knew that all it would do is cause us extra stress when pregnancy is supposed to be as little stress as possible for the babies. Also, if we found out something it wouldn't change anything for us, so why even worry ourselves especially w/ all of the false positives reported. Even though its been years, my mom had this testing done w/ my sister and they convinced her she was going to have a baby w/ downs and my sister thank god was born 100% fine. 

    To each their own though, this is just my view on it...

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  • Due to both of our family history the dr sees no reason for us to get it and I agree with the dr.  If the baby has any of those its not going to change how I feel.  We will still raise the baby.
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  • We didn't get the tests.

    I was about to flame you when I read the title, because I thought you were referring to any and all tests, such as gestational diabetes testing, the routine urine tests,  etc.  ;)

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  • Skipping it all.  To me there is no reason to cause extra worry when it does not change the outcome.  I've heard people say that they want to know so they can "prepare mentally."  My H and I just don't see the point, but to each his/her own!  We're right there with you!
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  • We skipped them all. I figured if something was found on our ultrasound then we'd go from there but why worry for now reason.

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  • We skipped them all. I figured if something was found on our ultrasound then we'd go from there but why worry for no reason.

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  • No genetic testing, no ultrasounds.

    Elkanah Brave, born 02/06/2012 7:26am
  • image krissywave:
    Due to both of our family history the dr sees no reason for us to get it and I agree with the dr.  If the baby has any of those its not going to change how I feel.  We will still raise the baby.

    Exactly this.

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  • This is our third baby and have never and will never have the nt or genetic tests done it's just not for us.
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  •  

    I also chose not to have any test done. DH and I talked about it and I talked to family and friends. I didn't see the point in having it done when it's not always right and why worry about something that may not be true. The results would not change the fact that we loved our baby.

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  • This is a soap box issue for me and the responses in this thread just confirm why I get so worked about it.  Why do all these respondents assume that those of us who DO get testing do so in order to make a decision whether or not to terminate?  Of course that's an option but in my experience, that is rarely the reason people choose to get it done.  If there is something wrong with the baby that would require specific medical care during pregnancy or at delivery, it's nice to know that.  Knowledge of the issues means giving the child the best chance at the moment of birth by being able to provide him or her with the best medical care.

    Also, these tests are not positive vs. negative tests so there is no such thing as a positive, negative or false positive.  It's odds.  If someone tells you that you have a 1:200 chance of winning the lottery, you would not tell people that you had been told you WILL win the lottery, right?  Same thing. 


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  • No, we didn't get any tests. 
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  • image elmoali:

    This is a soap box issue for me and the responses in this thread just confirm why I get so worked about it.  Why do all these respondents assume that those of us who DO get testing do so in order to make a decision whether or not to terminate?  Of course that's an option but in my experience, that is rarely the reason people choose to get it done.  If there is something wrong with the baby that would require specific medical care during pregnancy or at delivery, it's nice to know that.  Knowledge of the issues means giving the child the best chance at the moment of birth by being able to provide him or her with the best medical care.

    Also, these tests are not positive vs. negative tests so there is no such thing as a positive, negative or false positive.  It's odds.  If someone tells you that you have a 1:200 chance of winning the lottery, you would not tell people that you had been told you WILL win the lottery, right?  Same thing. 

    THIS! Thank you :)

    We had every test done that our INS would cover.

    If we got less than stellar odds, we wanted our OB to know this so we could be sent to a specialist and be prepared for what the baby would need upon arrival. Would she need surgery immediately? Surgery before she even got here? Special monitoring? Staff on hand when she was born? A certain level NICU? Not to mention, what, as parents, would we need to know to care for a special needs baby?

    The false positive thing really bugs me. You are given a range. That range can be taken, with simple math, and converted into a percentage of a chance... Even results with a 1 in 10 odds the odds are still IN your favor! 

     

  • image elmoali:

    This is a soap box issue for me and the responses in this thread just confirm why I get so worked about it.  Why do all these respondents assume that those of us who DO get testing do so in order to make a decision whether or not to terminate?  Of course that's an option but in my experience, that is rarely the reason people choose to get it done.  If there is something wrong with the baby that would require specific medical care during pregnancy or at delivery, it's nice to know that.  Knowledge of the issues means giving the child the best chance at the moment of birth by being able to provide him or her with the best medical care.

    Also, these tests are not positive vs. negative tests so there is no such thing as a positive, negative or false positive.  It's odds.  If someone tells you that you have a 1:200 chance of winning the lottery, you would not tell people that you had been told you WILL win the lottery, right?  Same thing. 

    This! Thank you! I have a child with a disability. He is autistic so none of these tests could give me odds for that but I do know that being prepared and having a plan for baby is important to me. If I can prepare, have the right specialist take care of me during pregnancy and then have the right ones there for birth, then I want that for my child. I never had plans to terminate if the odds came back that something was wrong.

    Thank you for posting this Elmoali! 

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  • I'm not doing any..... If I could help it I wouldn't even do the Glucose test. I'm not packing on the pounds in an unhealthy way and there is no history of diabetes.

    If you're not at risk and you wouldn't terminate the pregnancy then why set yourself up for worry? Chances are nothing is wrong and extra worry during pregnancy is a BAD thing ;-)

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  • We opted out of the testing. My doctor had also told me that we would likely be able to see if there are any abnormalities at the a/s.
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  • We chose not to. Neither of our families have anything in our history to really worry about. Plus - they can never be 100% positive and I don't need that stress. We will deal with it when the baby arrives.
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  • I just don't understand the concept of burying your head in the sand as an approach to life.  Not knowing ahead of time doesn't mean there's nothing wrong.  It just means that you're completely unprepared if there is something wrong.   Most babies with down's, trisomy, and other issues detected by these early tests do not come from families with a history of these issues.  So relying on the fact that no one else in your family had an issue is just ridiculous.

    There's a lot more at stake than just "worrying" if you find out there's a potential issue.  Most hospitals do not have Level 3 NICU's that are capable of dealing with many of the issues detected by these early screenings (severe heart defects, brain abnormalities).  Many of these issues also require special care and monitoring before birth in order to have a treatment plan in place that will give the baby the best chance at life.  If you don't get the testing and don't know about the risk, you may be planning to deliver at a hospital with doctors who are wholly incapable of giving your baby the help it will need immediately at birth.  By the time you could get the baby transferred to a Level 3 hospital, it would likely be too late. 

    Why would you not want to know enough to get the best possible care for your child?  I just don't get it.

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  • image mariahd43:
    We opted out of the testing. My doctor had also told me that we would likely be able to see if there are any abnormalities at the a/s.

    Ok so I've got to ask.  What is making you accept the a/s but decline the nt scan if you honestly believe you can get the same information from both?  The nt scan is no more invasive and also measures the nuchal fold, which is best measured before 13w3d. 


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  • image nonoemily:

    No genetic testing, no ultrasounds.

     

    Okay. I'm not trying to fearmonger, but it is scary to me that there are people who would not have your anatomy scan. To put this in perspective for you, I have no family history of congenital heart problems, had a textbook pregnancy with DD, and have no health problems. I am sure looking at my siggy, you can guess why I would encourage anyone who will listen how important it is to have your baby's anatomy scan. There is no (or very little) risk to the baby and an U/S is completely noninvasive, so I don't know why anyone would turn it down.

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  • I refused all early testing because of the false positive rates. I did have an amnio to confirm Trisomy 21 after my anatomy scan though!
    Lauren has Down syndrome and a complete AV canal heart defect
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  • I didn't do any testing but now I am regretting it.  I wish I had done the NT scan and bloodwork. 

    I was (am) already very concerned about my uterine abnormality causing complications. I had just seen a specialist that told me if the placenta attached in the wrong place, the placenta would not have enough bloodflow to maintain the pregnancy.  They would not be able to tell where it was attached until the 20 wk scan.  At the time it was offered I couldn't stand the thought of something else giving me something to worry about, where I felt there was nothing I could do about it. 

    I did have my head buried in the sand to an extent, now I'm worried that I didn't do it, and there could be important information I'm missing. 

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  • image BunnyJenny:

    I'm not doing any..... If I could help it I wouldn't even do the Glucose test. I'm not packing on the pounds in an unhealthy way and there is no history of diabetes.

    If you're not at risk and you wouldn't terminate the pregnancy then why set yourself up for worry? Chances are nothing is wrong and extra worry during pregnancy is a BAD thing ;-)

    IMO, this is completely different. I had NO history of diabetes in my family and wasn't unhealthy in my pre-pregnancy weight or my weight gain. Yet, I still had GD with DS. Not taking care of GD can result in lifelong health problems for your child, which is different that just knowing your odds of a potential post-birth issue.  

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  • I was born with a congenital heart defect. All the doctors and nurses at the hospital missed it, my pediatrician missed it - they all said I was 100% healthy except the fact that when they did the heel prick, couldn't get me to bleed, but they shrugged that off. My mom took me to an unscheduled ped appointment with a different doc by chance, and after he examined me, I was admitted to the PICU within the hour and had open heart surgery a few weeks later. The reason I hadn't bled with the heel prick was because I had such low blood flow that there was virtually no blood flowing in my foot. If i hadnt by chance seen that dr and if that doctor hadn't realized something was seriously wrong, I could have had permanent brain and other damage from the defect going untreated for so long. Or I might have just died one day and my parents wouldn't have even known anything was wrong.

    on the other hand, a poster on my regular board had a baby with a CHD that was detected during pregnancy. They were completely prepared so that when she was born, they knew their course of treatment, they had specialists on hand to treat her from the moment of birth, they could figure everything out ahead of time. She had surgery and is now 3 and doing great.

    That is what I think of when I say I want to be prepared. I accepted every single test available to me. My philosophy is the more information, the better. I would rather worry about something that turns out to be fine than be unaware of a serious problem and lose valuable time to think about and plan for treatment.
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  • We opted out of all but one testing. I don't remember which one it was, but one where they look at the brain/heart to make sure there are not any defects.  The only reason we even had that one done was because our hospital does not have the ability to do quick surgeries for those things so we would have had to look into going to another hospital.  Other than that we didn't see reason.  If our baby does have downs or something it won't change our thoughts and would just make us worry more now about him or her.  And with extra testing would only cause stress on me which woudl stress baby as well.
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  • image Mjmksb04:
    image nonoemily:

    No genetic testing, no ultrasounds.

     

    Okay. I'm not trying to fearmonger, but it is scary to me that there are people who would not have your anatomy scan. To put this in perspective for you, I have no family history of congenital heart problems, had a textbook pregnancy with DD, and have no health problems. I am sure looking at my siggy, you can guess why I would encourage anyone who will listen how important it is to have your baby's anatomy scan. There is no (or very little) risk to the baby and an U/S is completely noninvasive, so I don't know why anyone would turn it down.

    I'm with a midwife and will have my baby at a birth center. I am welcome to pay for elective testing and ultrasounds outside of my birth center but I have chosen not to. It's not like I turned down an anatomy scan. It was never on the table to begin with. 

    Elkanah Brave, born 02/06/2012 7:26am
  • image ELF4321:

    I just don't understand the concept of burying your head in the sand as an approach to life.  Not knowing ahead of time doesn't mean there's nothing wrong.  It just means that you're completely unprepared if there is something wrong.   Most babies with down's, trisomy, and other issues detected by these early tests do not come from families with a history of these issues.  So relying on the fact that no one else in your family had an issue is just ridiculous.

    There's a lot more at stake than just "worrying" if you find out there's a potential issue.  Most hospitals do not have Level 3 NICU's that are capable of dealing with many of the issues detected by these early screenings (severe heart defects, brain abnormalities).  Many of these issues also require special care and monitoring before birth in order to have a treatment plan in place that will give the baby the best chance at life.  If you don't get the testing and don't know about the risk, you may be planning to deliver at a hospital with doctors who are wholly incapable of giving your baby the help it will need immediately at birth.  By the time you could get the baby transferred to a Level 3 hospital, it would likely be too late. 

    Why would you not want to know enough to get the best possible care for your child?  I just don't get it.

    Pretty much all of that.

    I also get exasperated with the idea that people who do these tests are only considering whether or not to terminate.  And I get exceptionally testy with the idea that anyone who would consider termination doesn't love their child.  I know how untrue that is, because I know people who have gone through with medical terminations because it was the best, kindest, most loving and humane thing they could do for their child because they were dying in utero in terribly painful ways.

    If someone doesn't want the tests, well, that is a personal decision, and one they are free to make.  I may or may not agree but my opinion is not important in someone else's decision.  The judgment and self-righteousness, on the other hand, irritate the hell out of me.


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  • image ELF4321:

    I just don't understand the concept of burying your head in the sand as an approach to life.  Not knowing ahead of time doesn't mean there's nothing wrong.  It just means that you're completely unprepared if there is something wrong.   Most babies with down's, trisomy, and other issues detected by these early tests do not come from families with a history of these issues.  So relying on the fact that no one else in your family had an issue is just ridiculous.

    There's a lot more at stake than just "worrying" if you find out there's a potential issue.  Most hospitals do not have Level 3 NICU's that are capable of dealing with many of the issues detected by these early screenings (severe heart defects, brain abnormalities).  Many of these issues also require special care and monitoring before birth in order to have a treatment plan in place that will give the baby the best chance at life.  If you don't get the testing and don't know about the risk, you may be planning to deliver at a hospital with doctors who are wholly incapable of giving your baby the help it will need immediately at birth.  By the time you could get the baby transferred to a Level 3 hospital, it would likely be too late. 

    Why would you not want to know enough to get the best possible care for your child?  I just don't get it.

    Actually, these things cannot be confirmed (and most often not even detected) with an early screening.  Things are not fully developed at that point. The anatomy scan (what most people in this thread would likely refer to as the "gender scan" because they don't realize it's actually a form of "testing") is where these things are detected and problems are found.

    We had the NT scan done. My son's neck measurement came back elevated, but my blood work gave me "good" odds. My doctors are still stressing how "bad" it is to have that elevated neck measurement. We are worried sick waiting for our anatomy scan to get a better look at everything (fully developed) to check for further markers of a problem. At the time of our NT scan, that's the only thing that looked "abnormal" but things aren't fully developed at that point, which is why they wait until 18+ to do an anatomy scan.

    We would NOT get the NT scan again simply because we are not interested in ever having a CVS or amnio. (Our reason being that DH's daughter was part of the ~1% miscarriage rate of an amnio a few years ago.) Without doing either one of those, we're just stuck with odds that really are arbitrary for 6ish weeks until we can know more. I do think the NT scan is a good option for someone that would be open to a CVS or amnio because it would allow problems to be detected earlier rather than waiting until the pregnancy was half way over before having an idea of a problem.



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