I've searched the boards and I haven't found anyone who may have a child currently or has had a child who had Trisomy 18.
I had an emergency c-section about 2 weeks ago and my child was tested and has full Trisomy 18. She also has a VSD. She was early, born at 33 weeks 6 days. The doctors have let me know that babies with Trisomy 18 usually don't live past 1-2 months, and usually die in the first year of life. With that said, I am mainly looking for support from other parents who are currently or have dealt with this in their family.
It just seems that the doctors want my husband and I to take our baby home, just to die. I just can't look in her tiny face and accept that, but I cannot fix her and the doctors can't either. So if there are parents out there who have been here emotionally you can contact me with recommendations on how to cope at anytime.