Trouble TTC

LONG: Important Re: Clomid Monitoring possible TMI

I posted before that I was doing two cycles of 50mg Clomid with my OBGYN before moving on to an RE. The first month was April and it was a good cycle. Temps were perfect I could see the different parts of my chart and verified that I ovulated. My first 30day or less cycle. No PG, but I wasn't worried since AF was right on schedule and BFNs for several days.

I started second round April 30. May 11 I had about an hour and a half of moderate pain on my right side, followed by bleeding. My Dr's nurse said it was likely a small cyst that ruptured and to come in if the pain was sustained. Made an appt for May 21.  It happened again on May 18, but since the pain went away I resolved to just go in for my appt. My temps were VERY wonky. I had a small amount of temp shift, but nothing sustained.

On May 20, I had the same pain and bleeding but it didn't go away. I came home from work and finally ended up in the ER. My ovaries were huge. Right ovary was over 9cm and I had a 4cm cyst. Left ovary not quite as large but had 7cm cyst. My pregnancy test came back positive with a beta of 2396 - that blew me away.

Ultra sound found nothing in my uterus and she said she verified no issue with my tubes potentially the fetus was too small to see and go to my doc's appointment in the morning. Went home 1am, had doc appt at 9am. I nearly fainted several times on the way to the doc. Ultrasound at the doc's office verified the size of my ovaries and the cysts. The tech said that she couldn't see my tubes due to the size of my ovaries. They rushed me over to the hospital to go in through my belly button to have a look.

They found I had an ectopic pregnancy and my right tube had ruptured. Due to internal bleeding, I had over a pint of blood on my abdomen. I am so thankful I had already made that doctor's appointment for Friday. I can't believe the ER didn't keep me.

I thought that 50 mg of Clomid wasn't a big dose and I would be OK. I You guys were right. Monitoring is NECESSARY - EVERY TIME!!!  If this story helps anyone else then I am glad I told it.

 I was discharged from the hospital today DH and I are going to take a break from any and all treatments until next year. We aren't going on birthcontrol, but I am not going to the RE until next year.

 

Re: LONG: Important Re: Clomid Monitoring possible TMI

  • Oh my gosh! First of all, I am so glad you are OK. I am so sorry you had to go through that! I'm sure that was incredibly scary. You are so so right about monitoring. Take it easy!
  • ams8099ams8099
    10000 Comments Seventh Anniversary
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    Oh my goodness! I am so glad you are OK. That had to be terrifying for you. 
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  • Glad you are OK and sorry you had to go through that.

     

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  • Oh my gosh! I'm so glad to hear you are ok! And incredibly sorry you just went through that!
    9th cycle: BFP! DS born 10-26-11 ---
    1st cycle: BFP! Due: 5-24-13


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  • AMS - I remember first coming to the board and I thought you were being needlessly firm with me about Clomid and my OBGYN. I am telling you, I wish I could go back in time and listen to you!

    I was literally scared I might not make it. I tried to go to the bathroom before going to the operating room and I took one step and just fell against the wall whispering "I need help" because I was too weak to even stand up by myself.

    All female patients under the care of an OBGYN go to the same floor...the maternity ward. Going to my room all the nurses in the hospital saw the "4" light up and said "Awwww...congratulations" When I get off the elevator I heard babies crying and people going down the hall with flowers and balloons. I have had several BIG cries since Thursday. DH's birthday is Monday and I feel so bad for him.

    This is such a tough road. Please, tell EVERYONE that Clomid monitoring shouldn't be optional. If I had been monitored I would have known about my ovaries and could have taken a break cycle. I might not have had the huge cysts, and on and on.

    I don't know what our chances or options are now that I have only one working tube.  I can't think about that now. Only getting better.

  • I'm sorry you had to go through that. :(
  • I'm so sorry you had to go through all this. If you fill comfortable doing so, you may want to cross post this to TTGP so they can learn.
    Trying to grow our family with both fertility treatments and adoption since March 2009 
    IUIs#1-4 = BFN, IVF#1 = c/p, IVF#2 = OHSS, FET#1=BFP
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  • First of all thank goodness that you are okay! I'm so sorry that you had to go through all of this. Dr's that do not monitor on Clomid should be shot.
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    Our answered prayer, Emilie Helen

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    Diagnosed with PCOS March '10 - Started 1000mg of Metformin
    After 3 unsuccessful Clomid cycles, Provera+FSH+IUI+Progesterone=BFP!
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  • STL34STL34
    10000 Comments Sixth Anniversary 25 Love Its Name Dropper
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    I am so sorry you are going through this.  What an awful experience.  I am so glad you are OK.

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    ~SAIF/PAIF/Everyone Welcome~ 

    Me= 35 and DH = 40

    Dx: DOR, Endo, APA+ (really high beta 2 glycoprotein antibody and high everything else tested), heterozygous MTHFR mutation, positive for lupus anticoagulant, high FSH, low AMH and both tubes blocked (per HSG on 3/8/11)

    IVF #1 - long lupron (with HGH, intralipids, lovenox and BA); 4 retrieved, 3 fertilized; ET 2 blasts and 1 frozen = BFN

    IVF #2 - a version of antagonist with EPP (with HGH, intralipids, lovenox and BA); 6 retrieved, 4 mature, 3 fertilized, 2 blasts and 1 frozen blast transferred on day 5 = BFN.

    IVF #3 April was postponed to May, May was canceled. June/July was canceled. Had a cyst aspiration and then began IVF #3 in August. ER on 8/22; ET on 8/24 with AH. +HPT on 9/5. Beta #1 (11dpo) = 3; Beta #2 (15dpo) = 29; Beta #3 (17dpo) = 60; Beta #4 (19 dpo) = 118. Heartbeat at 6 weeks 6 days =132.  Lil is here!

     
    TTC#2:  Trigger + TI = BFN; Clomid + IUI = BFN; next up is IVF - hopefully soon!  (I cancelled the mini-IVF and decided to go with a different RE.)

  • ams8099ams8099
    10000 Comments Seventh Anniversary
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    image LovingIan:

    AMS - I remember first coming to the board and I thought you were being needlessly firm with me about Clomid and my OBGYN. I am telling you, I wish I could go back in time and listen to you!

    You can use your story to help educate newbs. I am so sorry you had to learn from experience.  I hope you can find a good RE that will help you!

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  • Oh my goodness!!  I am so sorry you had to go through that.  So glad you are ok!  How scary!  A perfect example of how important it is for clomid cycle to be monitored.
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    After nearly 3 years, 3 IUIs, and 3 IVF our miracle is here!



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  • Wow, thanks for sharing your story.  This is intense.  So sorry about the ectopic pregnancy.  Man, what a roller coaster.  May God give you guys the strength over these next weeks and guide you in your future decisions with TTC.

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  • I am so sorry that you had to endure such a traumatic experience.  I know it is to view clomid as an easy fix vs. serious drug, I hope you don't mind if I bookmark this thread and share it with others that post that they are considering clomid without monitoring.

    I hope you are feeling better really soon!

    TTC since 07/2009
    Me: PCOS, Blood/Immune Issues DH: Low all 3
    Jun.- Sep. 2010 IUI#1-#3 = BFN
    Oct. 2010 = IVF #1 = B/G Twins (passed away Feb. 2011)
    May 2011 = Myomectomy and trans-abdominal cerclage (TAC)
    Sep. 2011 = Surprise BFP = C/P
    Feb. 2012 = sFET #1 = BFN
    Feb.2012 = Hail Mary IUI #4 = BFN
    April/May 2012 = FET #2 w/our last two embies = BFP (Please let this be it!)
    Beta #1 8dp5/6dt = 234 Beta #2 10dp5/6dt = 695 Beta #3 12dp5/6dt = 1796 Beta #4 17dp5/6dt = 17,888 U/S #1 May 17, 2012 = Twins
    Baby B's heart stop beating at 9 weeks 5 days
    Our little miracle baby is a boy. :)

    Baby Boy Owen and Baby Girl Avery were born too early on Feb. 13, 2011 due to a pedunculated fibroid, incompetent cervix and suspected placental abruption.
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    Lots of love and luck to my PAIF/3T/IF Veteran ladies, especially my dear friend Zookie. Congrats to Papps, Teach84 and Starbuck on their little ones.
  • Please, bookmark away.

    My doctor told me that the worst outcome would be twins. To DH and I, a two for one shot at a family and never having to go through fertility treatments again sounded like a GOOD thing. Though twin pregnancies carry additional risks, it still sounded like and overall good thing.

    I will cross post to TTGP as well.

    I am a plus sized girl. I had read Clomid was less effective on bigger women. I am still blown away that 50 mg did this much damage to my body.

  • How awful!  I'm sorry to hear you had to go through something so painful, both physically and emotionally.  Best of luck to you as you heal, and when you begin ttc again.
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    ~An angel wrote in the book of life, my baby's date of birth. Then whispered as she closed the book "too beautiful for earth."~


    After a 2nd tri m/c due to IC, infertility, a 1st tri natural m/c, 3 IUI's, and 2 surgeries, our miracle is finally here!




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  • image LovingIan:

    AMS - I remember first coming to the board and I thought you were being needlessly firm with me about Clomid and my OBGYN. I am telling you, I wish I could go back in time and listen to you!

    I was literally scared I might not make it. I tried to go to the bathroom before going to the operating room and I took one step and just fell against the wall whispering "I need help" because I was too weak to even stand up by myself.

    All female patients under the care of an OBGYN go to the same floor...the maternity ward. Going to my room all the nurses in the hospital saw the "4" light up and said "Awwww...congratulations" When I get off the elevator I heard babies crying and people going down the hall with flowers and balloons. I have had several BIG cries since Thursday. DH's birthday is Monday and I feel so bad for him.

    This is such a tough road. Please, tell EVERYONE that Clomid monitoring shouldn't be optional. If I had been monitored I would have known about my ovaries and could have taken a break cycle. I might not have had the huge cysts, and on and on.

    I don't know what our chances or options are now that I have only one working tube.  I can't think about that now. Only getting better.

    You might find some more support on the Miscarriage/Pregnancy Loss board or the TTC After A Loss board.  Also, FWIW, I have heard from women on the TTCAL board that their dr's have told him that once they lose a tube, the one working tube will compensate for the other one, and can pick up the egg, no matter what ovary you ovulate from.  GL!

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    ~An angel wrote in the book of life, my baby's date of birth. Then whispered as she closed the book "too beautiful for earth."~


    After a 2nd tri m/c due to IC, infertility, a 1st tri natural m/c, 3 IUI's, and 2 surgeries, our miracle is finally here!




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  • Thanks, sweetie. I have another appt with my doctor to follow up later this week I will definately be asking about all that.

    I did XP this over to TTGP. I just really want some of those women in my possition who were thinking "I don't need an RE...I just need a little jump start" to read my story and think again about all the risks.

     Thanks for the support everyone.

  • I am so sorry for your loss and for all the pain you endured.  I really get pissed at OB's who think they can do an RE's work...they can't.  An IRL friend of mine was given Clomid by her OB and I told her she needs monitoring.  She got snippy with me and said all doc's do things "differently."  Well, she ended up with a huge cyst that needed surgery.  I hope lots of women read this post.  My OB told me to see an RE when I told her I was having TTTC.  She said outside of an SA and B/W she "couldn't help" me.  I am forever grateful and trust her that much more because of it.
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  • I'm so glad you are okay. That does it for me. I was not monitored last month on Clomid and called Friday to insist that I needed it.  I was supposed to start the first pill today, but they haven't gotten back to me and I haven't had an u/s since the last round so I'm not going to take it this cycle until they can check me out.  So sorry you had to go through that!  Thanks for sharing.
  • I'm so sorry for what you've gone through.  I hope you heal quickly and you are successful in TTC soon.

    I also want to say thank you for posting this.  I've been seeing my OBGYN for problems with amenorrhea and he just prescribed me 100mg of clomid after 2 failed rounds of provera/prometrium.  No bloodwork, no ultrasound, not even a pregnancy test.  I was uncomfortable with that to say the least, but after reading this there's no question that I need to run from this doctor.  I'm not going to take the clomid, and I'll be calling an RE tomorrow.

  • So sorry that you had to go thru all of this! 

    And, your chances aren't really diminished now that you have only one working tube....I've had an ectopic, and my RE has assured me that.   Can't remember word for word what I was told, but it was something about the fertilized egg knowing where to go even without the tube being there. 

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  • Traci09Traci09
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    What a scary situation!  I'm so sorry that you had to go through that, and I hope the healing process is quick for you.

     A friend of mine is doing Clomid with no monitoring, and she told me that her doctor said it wasn't necessary.  I think I'll forward this on to her.

    TTC #1 since 4/09 w/ MFI
    IVF #1, 7/10: Cancelled due to dominant follicle; IVF #2, 9/10: c/p; FET #1, 11/10: c/p; IVF #3, 4/11: BFN; FET #2, 6/11: BFP! Beta #1 = 118 (11dp2dt), Beta #2 = 1975 (16dp2dt)
    DS born 2/17/12

    TTC #2
    IVF #4, 11/13: BFN; IVF #5, 3/14: BFP! Beta #1 = 59 (11dp2dt), Beta #2 = 406 (15dp2dt)
    EDD 12/19/14

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  • How horrible!  I am so sorry for everything you went through.
    My Journey in 2010

    2/24 - 50mg of Clomid + IUI on 3/9 = BFN

    3/24 - 50mg of Clomid + Trigger + IUI on 4/9 = BFN

    4/22 - 50mg of Clomid + Trigger + IUI on 5/7 = BFN

    5/22 - Starting BCP. IVF here we come!

    6/9 - SHG - RE discovered several uterine polyps

    6/22 - Hysteroscopy to remove polyps

    7/23 - IVF begins -- 8/5 ER (14 fertilized) -- 8/11 ET one blast -- no snow babies

    8/20 - I am KU! Beta #1 = 52, Beta #2 = 473, Beta #3 = 2666

    8/28 - Experienced heavy bleeding -- 8/31 - Confirmed miscarriage

    10/6 - 50mg of Clomid + IUI on 10/20 = BFN

    11/7 - 50mg of Clomid + 75iu of Follistim + Trigger + IUI on 11/18 = BFN

    My Journey in 2011

    4/29 - Surprise BFP! Beta #1 = 570, Beta #2 = 1438, Beta #3 = 3418


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  • I am so sorry for everything you have gone through. I hope your recovery is quick! That is so scary!!!

     
    A+S | Met 8/24/06 | Married 9/27/08
    Started TTC 12/2008 | dx PCOS 5/2009
    6 failed clomid/femara/TI cycles, 1 failed clomid/ovidrel/IUI cycle
    Successful Cycle: 5/12/11 - 1000mg Metformin + 100mg Clomid(late response) + TI = BFP

    2/13/12 - We proudly welcomed our daughter, Hadley Teresa!
    Lots of Luck to all of 3T/IF

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  • Thank you so much for sharing this! I was supposed to start my third round of serophene (same drug basically) yesterday but some of the members had warned me to wait to see an RE first. My first cycle was 50mg, second was 100mg. I'm glad I listened to them and didn't start the meds this time. Your story has helped me realise that it was the right choice to wait. Good luck with TTC in the future and hope you feel better soon.
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  • LGLDVMLGLDVM member
    I am so sorry for your loss and I am so glad that you made it through everything alright.  Take care, hon.
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    Dx w/PCOS in 1997, TTC #1 from 1/09-7/11
    after multiple rounds of clomid, femara and injectables,
    I got pregnant with twins on IVF #1. Twin girls born at 36 weeks 2/24/2012
  • That sucks, I'm so glad you are ok though. My RE told me if they didn't find anything wrong, that we could try Clomid, and I honestly was like ok that's no big deal. Now, if we end up going that route, I'm definitely going to be asking a lot of questions. I'm glad you posted this.
  • OMG dude, I was just asking on a different post if I need to worry about monitoring and was directed to your post. I am SO sorry you had to go through all of that. Now I'm worried though. I was on Clomid for 2 months. On the second month I had a visual reaction to it and was taken off that. This month will be my second month of Femera. I haven't had many side effects. Just dizziness, hot flashes and moodiness. What bothers me is, I'm not sure if it is even working because I am not being monitored! I have had my first positive ovulation kit for the first time EVER. After reading your story I am pretty nervous now...I think I need to talk to my doc. 
  • So it's been a couple of years since this post, but another Bumpie sent it to me.

    SO GLAD SHE DID!

    I hope you're well and that things worked out.

    All the best!

    imageimage
    My 2 blogs:
          Jalara's Chronicles
       &   India Surrogacy Blog
    5 miscarriages of 6 babies, 2 IVF cycles and then a failed international adoption

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    Now? Surrogacy plan in India!
    Surrogate: Feb 5th 2014: Betas: 10dp5dfet @ 110, 12dp5dfet @ 302, 14dp5dfet @ 767
    First time a beta has ever doubled in 48 hours - ever!!!
    Puddle due October 15th

    Expecting via surrogacy!
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  • I am so sorry that you have to go through all of this. I can only imagine how scary it is for you and your family. Best wishes for your recovery, and best wishes for a quick and easy pregnancy when you are ready again.
    TTC #2 since 2/2010
    1/2011 My Dx: 1 Polycystic Ovary
    Husband Dx: Hypothyroidism= Low Testosterone & Low Sperm Count (7.4 m/mL)
    4/2011 Husband began thyroid meds
    5/2011 Begin OPK, Provera 10mg & Clomid 50mg= +OPK CD-17= BFN
    6/2011 SA-Sperm Count lower (2.2 m/mL), Testosterone slightly higher, Thyroid improving.
    Husband prescribed Clomid. Taking a break from my Clomid until we see SA results 9/2011. I will continue Provera as needed.
    7/2011 Unmedicated Cycle= +OPK CD-16=?
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