High-Risk Pregnancy

Anyone with Ulcerative Colitis?

Hi,

 

My husband and I are eager to start a family. I have ulcerative colitis and on meds....just looking to chat with someone who has the same concerns.

Re: Anyone with Ulcerative Colitis?

  • I have Crohn's colitis so it is similar to IC.  I am pg with #2 and on meds that are considered safe during pg.  I ws diagnosed after DD#1 was born so this is my first pg with IBD.  Have you talked to your GI dr about your plans?
  • I have talked to my specialist but all he says is that make sure you are not in flare up when trying to conceive. I am not sure if the meds I am taking are "safe" for pregnancy. I am just unsure and am not getting the support, I am looking for. I have an appointment to see a High risk pregnancy doctor but that is not till february...I am anxious to get started...Can I ask you what Meds you are taking?
  • Hi!  I read a few medical journal articles about pregnancy and Crohn's and a few chapters in books I have--along with talking to my dr to make sure the meds I am taking are safe.  My GI dr and my OB just told me they were okay.  I am taking Asacol and topical steroids.  You don't want to be in flare during pregnancy b/c of the risks to the baby--you don't want to have to need surgery or to not be able to get enough nutrition in your diet to support the baby's needs.  My doc says that with Crohn's 1/3 of pg moms get better during pregnancy, 1/3 stay the same and 1/3 get worse and it is hard to tell how you will do.  My GI doc did a sigmoidoscopy before I started TTC and told me everything looked good and made sure I was on baby safe drugs.  I am supposed to follow up with him soon but since I've been okay so far this pg, I haven't been in any hurry.  You might want to search the drugs you are taking on www.safefetus.com and see what class they are and their risks during pregnancy.

    I also have read these books which have chapters on IBD and pregnancy and talk about which drugs are okay and which are not:

    The first year: Crohn's disease and ulcerative coilitis: an essential guide for the newly diagnosed, by Jill Skylar

    and

    100 Questions & Answers about Crohn's disease and ulcerative colitis: A Lahey Clinic guide
     
    Try getting them through your library if you don't want to buy (but both are available on amazon.com)
     
    Good luck and let me know if you have more questions.
  • Thanks for the tips. I guess I am confused because I read conflicting information on the medication I am taking. Both of my specialists say Imuran is okay during pregnancy. I checked it out on the site you recommended and it had a poor grade (D). It is soo frustrating. I will check out those books you recommended maybe they will be a little more clear.
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