May 2014 Moms
absentmindedwife
member
Options
T&P please, my son has SMA type 1
absentmindedwife
member
Ladies I know I have not posted much lately, as it has been so hard for me to see all of the happy healthy babies here. I had been concerned about my sons developmental delays for several months and we were referred to a pediatric neurologist back in November. We received the worst possible phone call today, his blood work came back and he has SMA type 1. I don't know what to do other than just love him as much as I can for however long I get to have him. I can't stop crying. Please pray for me, my family and my special boy. He has so many smiles to give still. While we sometimes worry about baby food, diaper rash, and sleeping-- you never know when your feet will get knocked out from under you and all of the small worries seem like nothing. Girls, hold your babes extra tight tonight, as I will be doing from now until I can't anymore.
This discussion has been closed.
Re: T&P please, my son has SMA type 1
T 2.12 | W 5.14
We are all here for you. So many positive and uplifting thoughts coming your way.
<img src="<a href="http://tinypic.com?ref=2s9vof8" target="_blank"><img src="http://i59.tinypic.com/2s9vof8.jpg" border="0" alt="Image and video hosting by TinyPic"></a>" width="180px">
BFP#3 9-4-13 Benjamin Lee born 4-28-14
BFP#2 2.5.11 (EDD 10.15.11) DS born 9.28.11
BFP#4 8.27.13 (EDD 5.6.14) DD born 4.23.14
My Recipe Blog
~All AL'ers welcome~
BFP # 1 - 12/19/09 EDD 08/27/10 - D&C 1/26/10 @ 9w5d
BFP # 2 - 06/05/10 EDD 02/17/11, DS1 born on 2/14/11
BFP # 3 - 04/10/13 EDD 12/21/13 - D&C 05/15/13 @ 8w4d
BFP # 4 - 07/27/13 EDD 04/08/14 - CP 07/29/13
BFP # 5 - 09/14/13 EDD 05/28/14, DS2 born on 5/22/14
Nora - 10.26.12
Henry - 5.9.14
Mrs. B's Ovulation Chart
TTC Baby B since 10/2012
BFP#1 12/27/12 II TWIN GIRLS II D&C 2/15/13 TRAP sequence
Clomid + TI + Acupuncture x 2 cycles
BFP#2 9/5/13 II EDD 5/16/14 II Beckett Ryan born May 10, 2014