Warning may not be great reading for those soon to deliver or trying to get pregnant.
I know many of us are not one and done and choice and I know many of us had HELLP like me. So I think it might be nice to share our experience and journey and perhaps help those who have recently come into this category. So share you experience in terms of the issue, when you found out you were medically oad, how did you feel and how you have moved forward. Any words of advice for those just starting on this path. I will go first!
Re: Medically One & Done/One & Done Not By Choice - Share you story
Our journey started a year before we conceived DS. We had been trying for a year and had just started fertility testing when I got my positive pregnancy test. We were overjoyed. 10 weeks in I had bleeding and they could not find the heartbeat, that was a Friday. After a stressful weekend we went back for a second ultrasound and everything was perfect. Other than that I had a prefect pregnancy, no morning sickness and lots of energy.
Fast forward to 32 weeks. I had just had my babyshower and suddenly felt like I had hit a brick wall. I felt odd and was in pain. I couldn't sleep. Regardless I went to work Monday, Tuesday and on Wednesday I even went out on a construction site, hard hat and steel booted pregnant lady! Wednesday I saw my OB as part of my regular check ups and she said I had to stop work immediately and get tests done the next morning to confirm if there were other issues because my blood pressure was 190/110 while it had been 120/80 all along.
The next morning I end up having severe chest pains and called DH to take me to the hospital. My BP is now 240/150. Tests confirm I have HELLP. They install 2 iv (which delivery various medications) and a cathader, No lights are allowed, curtains closed, no tv no visitors. 2 special nurses are placed on duty and DH is told not to leave the room because they did not know how stable I was. I was also told I could not eat or drink. They decide to induce because the only away to address HELLP is to have the baby. But they think I will go into labor quickly. Shortly after they start the induction I begin to vomit on a frequent basis.
This goes on for hours. DH says all he can vividly remember is going to the washrooms with the little trays I was throwing up in and seeing them lined off. By this time I am throwing up blood. Blood begins showing up in my urine as well. The nurse takes DH aside and tells him the doctors are letting things go too long but we trust our doctor and follow their lead. 36 hours after we have started they decide they need to do a C-Section. DS is born early but miraculous healthy and I am over come with joy but he is quickly wisked off to NICU as I am still too ill to care for him. I remain in the dark room for 2 days until my body returns to normal with occasionally visits from DS and DH.
I go home in a daze as I really never knew what was happening or what it was all about. DS is a wonderful baby and we get into a routine.
It is not until my 6 week appointment that I get the "news". I am going through things with the OB when she says the words "Well you know you shouldn't have any more children". I am taken aback and shocked. I stutter some response, she repeats herself and tells me "You should go have and enjoy the healthy child you have."
I cried the way home. I tell DH while reasoning with him that we could try again, lots of people do. I've read about it. Then comes the moment when I really know, DH tears up and tells me "meo, whenever I think of the birth all I see is those trays of blood, all I hear is the voices in my hear cautioning me not to leave the room, stay close by, and that pit in my stomach not knowing if you would make it or not, I can't do that again or think of DS losing you."
And it is a process of healing but you do it on your own because no one really gets what it is like to loose a dream of what you thought your family would be. Because you have a child, you have your family so you have no right to feel lose so you keep it inside.
I brought up adoption frequently but DH was not ready. Finally after 4 years he is there and we go down that road but in that process I for the first time take stock of our life and our blessings.
It is then I realized that I feel my life is complete, our family is complete and I can be happy and enjoy the child I have, as per the doctor's orders
Our story began in 2010 when we started TTC. I became pregnant pretty quickly. We were so excited, and at about 7.5 weeks, we told our moms on Mother's Day. I had been having some morning sickness, which went away suddenly a few days later. The Friday after Mother's Day, I started having some light bleeding, so I called my OB's office. At first, they told me to go home and rest for the rest of the day and then come in to see the doctor in the morning. I was on my way home when the nurse called me back and told me to go to the ER. I was in such a fog that I didn't even think to call my husband. By the time I got to the ER and was in a room, I was bleeding heavily and new it was over. I was at the ER for hours getting labs and an ultrasound and waiting for the doctor to come in and tell me what I already knew. The ER doc was not very compassionate, but I won't go into that. He told me I'd had a miscarriage. I was still alone at the hospital and headed home to tell my husband. It was awful calling our moms less than a week later to tell them I'd miscarried.
We waited a couple of months before we were going to try again. In the meantime, my back, which I had injured a couple of years ago really flared up. I was in excruciating pain (and I have a very high pain tolerance, so much so that I'd run several half marathons in spite of my injury...stupid, I know). We tried a couple of nerve blocks, which had helped in the past, but they didn't touch the pain. I ended up having back surgery in December 2010. It was a very long recovery, and the nerve had been so damaged by the disc that I was still in a lot of pain. I had several more blocks post surgery and finally was about 75% better about a year later. I wasn't able to do any exercise because that flared it up, but I had pretty given up on being able to be active anymore.
In the midst of all this, I became very depressed. Losing the pregnancy and then suffering from chronic pain and physical disability really took a toll on me. I actually considered suicide more than once during this time, but I couldn't do that to my husband and family (I have an aunt who committed suicide, so I know how terrible that is for the family).
With lots of therapy (and medication adjustments), I was feeling well enough for us to start TTC again in early 2011. I started charting and using OPKs right away. I figured it would be easy for us to get pregnant since it had happened before. We went through month after month of BFNs, which started to get really hard for me about 6 months in. I started getting really depressed again. Finally after a year of TTC (I had just turned 35), I went to see my OB. She looked at my charts and didn't think I was ovulating. She recommended that we start fertility testing on my next cycle and try a round of clomid before moving onto more intensive treatments. DH went for his semen analysis, which he was proud to say turned out great! Lol. We were waiting for my period to start so I could start my own testing. Finally after my period was 2 weeks late, I took a test and got a BFP! I was shocked...and so excited!
I was a nervous wreck, and we tried to hide it from everyone until the second trimester. I had terrible morning sickness but I didn't care! The second trimester was easy and I felt great. I started seeing stars sometimes (usually in the shower), but I (stupidity) chalked it up to pregnancy vision changes and never mentioned it to my doctor. By about 30 weeks, I had gained a ton of weight, but my OB and I weren't sure how much because my old MD's office (my OB opened her own practice half way through my pregnancy, so I moved practices to follow her) didn't send my records over despite multiple requests. That also meant we had no records of my blood pressure pre pregnancy or for the first half of my pregnancy. Not good.
Around 30 weeks, my blood pressure started acting up. It would be high at my OB appointments (the highest was 210/140 at my 35 week visit). My OB kept sending me upstairs to labor and delivery, and my BP would always go back to the low end of normal. We chalked it up to 'white coat hypertension.' My OB had me monitoring my BP at home and work several times a day. Sometimes it would be up a bit but would always come back down.
Around 33 or 34 weeks, I started having some serious swelling and upper right abdominal pain. I thought it was just the baby pushing on my ribs. I remember telling my coworker my ribs hurt really badly and asked her if that was normal. She said it was probably the baby in my ribs. I threw up a few times here and there but thought it was just normal pregnancy stuff.
I had my baby shower at 35 weeks and my work baby shower at 36 weeks. The next Saturday night (36.5 weeks). I was very sick. I was having severe upper abdominal pain and vomiting every few minutes all night long. I finally called my OB Sunday morning, and she had me meet her in L&D. She ordered labs and an abdominal ultrasound. I remember feeling like I was dying. My BP had been high (170/110) when I took it at home but was OK at the hospital.
My husband and I were waiting for my doctor to come in and release me to go home when the nurse came in and said my labs weren't good and I was having the baby today. She said I couldn't have an epidural (I later learned that this was because my platelets were 50,000) , so I opted for a c-section. I was in the OR within the hour.
The surgery went well. I had a spinal, so I was able to be awake. It was all a blur, and I was so thankful to not be able to feel pain anymore. DD ended up in the NICU for sepsis (meconium) and labored breathing/fluid in the lungs. She did well and only had to stay for 4 days. I know we were extremely fortunate.
The day after I delivered, my OB explained that I had developed HELLP Syndrome and was very lucky to be alive. My ultrasound showed liver damage, and I was close to needing a platelet transfusion. My OB let me go home for the weekend on Thursday, but I was on strict bed rest and had to follow up with her on Monday. My BP wouldn't stabilize, so I ended up on BP meds for about a month. I was also followed by a GI doctor for about 6 months. Thankfully my liver was OK after that point.
My OB told me that there is about a 25 to 40% chance that I would get HELLP and/or Pre eclampsia in my next pregnancy. She is an optimist and feels that my chances of a healthy pregnancy are good. My husband and I decided that the risk isn't worth it, especially given that TTC was so hard on me, emotionally.
We are happy with our family of 3, although I do feel a twinge of sadness when I see women with pregnant bellies or new babies. DD is amazing, and I am so thankful for her.
Thanks for the chance to share my story. @Meo34, I don't know if you ever feel this way, but I feel like I was traumatized by HELLP. I worry all the time about something being wrong with my physical health. I'm hoping that it will get easier as time goes by. We'll see....
Yes I definitely felt that way. Physically I felt it was a long time to recover and feel like myself. It is worrisome as I also almost went into liver and kidney failure. I also found a lack of support and education. They just release you with no real follow up and discussion. It wasn't until 6 weeks later I got a run down and that was rushed at best. I had to do a lot of my own research to get information. I also find people are misinformed and associate it with pre-E or high blood pressure, which is serious but not the same at all.
I also note yours happened after the baby shower as well....LOL...maybe there is a correlation.
Thanks for sharing and to everyone that has contributed. I think it is really healing and to know you are not alone. I think it is important for others, especially for those just coming into this to feel ok about being sad or feel a sense of lose. I think that was my biggest struggle because I felt I did not have a right to feel that way because I had a healthy beautiful baby. Also I think there is a sense of lose of the birthing experience because of all the trauma and health issues. Being so medicated I barely remember anything so that was a little sad. I have totally come to terms with it now but at the time I felt wrong for feeling that way. I think it is good for people to know these are normal feelings.
*triggers mentioned*
With zero risk factors, I was diagnosed with GD. It's not uncommon but was surprising. At 34 weeks I began having contractions and H began to drop down. Hospitalized for two days and was on bed rest for a week while taking Procardia. At 36 weeks, went off the meds and was released to normal activity. Because of the GD I was receiving twice weekly NST's which are done at L&D. At 36W5D, I was just about to be unhooked from the NST machine when nurses flooded the room. One was in the hallway screaming for a surgeon and I was about to be put under. It all happened so fast I don't remember when I went from watching TV (yes, teen mom!) to nurses starting IV's/the baby warmer/surgical tray etc. After a shot of terbutaline H's heart rate popped right back up to normal. My doctor ran over from next door, an ultrasound was done, the perinatologist came in...no one could figure out what had happened.
I'd been having a few contractions lower than before over the previous few days and I said to my doctor, that I thought it happened on one of the lower contractions. I'd only been having two or three of the lower contractions for the last couple of days. Well, 45 minutes or so later, my nurse is in the room and I feel it start again. My husband had arrived, sweaty from the gym poor guy, and we all look over at the screen and down baby H's heart rate just dropped to 42. My doctor was on the floor and said "I don't know what's going on, but we need to get him out."
Luckily one more shot of terbutaline and his heart was back at normal, so they rushed me into the OR, popped in the quickest spinal ever, and pulled out squish. Poor guys Mama had grown a super long umbilical cord that he'd swam through and created a true knot. It was also wrapped around his neck with the true knot being at an angle the ultrasound couldn't see.
Since then I've had multiple OB's comment that for every true knot they see, one child will be born still.
If you grow one long cord you are likely to do so again. We're happy as a family of three and the risk just isn't worth it to me. Since his birth I've also learned that GD is often present in mother's with true knots where it likely would not have occurred otherwise. GD isn't the worst thing in the world, but combined with the risk of fetal death, we are done.
Also, they asked to keep my cord as they wanted to use it for a study. It was that long.
Warning. .. losses mentioned. ...
I delivered my first son December 14, 2011. He was stillborn at 31 weeks. I was diagnosed with pre e a week earlier but it was determined that that was not the cause of death. Ultimately they weren't able to tell us what happened other than that it was just a terrible fluke. We named him Gary after his dad. We were devastated to lose him and it took us a long time to even begin to heal from that.
After our loss we were desperate to become pregnant again and conceived our second child the following October. That pregnancy was medically easy but extremely stressful for me. I was induced at 37 weeks and delivered a beautiful baby girl who is the light of our life!
When dd was four months old I became pregnant again quite by surprise. I wasn't ready for it and told dh that this would be our last pregnancy, but embraced it and looked forward to having another baby in the house.
At 17 weeks my integrated screening came back as abnormal. They thought the baby had down syndrome and scheduled a follow up ultrasound. When we went for the ultrasound they were unable to find the baby's heartbeat. We were devastated all over again. They recommended that I have a d&c because this loss was so much earlier than my previous loss and they thought it would be less emotionally tolling for me. It was terrible. The procedure had to be done in an abortion clinic. Protestors were yelling at us as we went in. Everything was very clinical. There was no compassion at all. I was left feeling like it was all a dream because I never had the chance to hold or see my baby. I've had a very difficult time dealing with that ever since. We didn't find out the baby's gender but named it Riley. They did genetic testing to confirm the downs but they found out that there was nothing chromosomally wrong. The conclusion was that there was a problem with my placenta.
Dh and I talked after our second loss and decided that we would prevent future pregnancies for two reasons: first because we still don't know the cause of either of our babies deaths, and second because I don't think I could handle the stress of another pregnancy and be the kind of mother that dd deserves.
After 5 years of TTC, we are accustomed to being on the wrong end of the bell curve. Our infertility is sufficiently severe that IVF was the only option. "Luckily" we made beautiful embryos. Unfortunately- 7/11 of the "perfect" embryos we transferred just.... didn't stick. The RE has no idea why I have constant implantation failure- all the testing came back normal. And of the 4 that did manage to implant 2 were early losses, and a third allowed us to discover the hard way that even when I can get a viable embryo to stick and make it past the first trimester- I have an incompetent cervix. We lost the third at 17 weeks. Traumatic doesn't even begin to describe the experience.
So, we decided to try one more time. Two embryos went in. One stuck. By the time I went in for a cerclage evaluation at 17 weeks- my cervix was already very short and getting shorter every day. They rushed me in for a cerclage a few days later and spent the next 19 weeks telling me that I'd be lucky if I made it to the next appointment before delivering my baby. The first month I was simply on restricted activity while waiting for viability. The following 3 months I was on full bed rest with the constant threat of hospital bed rest hanging over my head.
I am one of the lucky ones- for once. I made it to 36 weeks, they removed my cerclage, and I went into labor 2 days later and delivered without complications. DD went home with us with no NICU stay. She is the light of our lives.
The doctors say that I can get pregnant again. That if I get pregnant again- they can do an early cerclage and I might be able to avoid bed rest. But to get pregnant again could take even more years of infertility treatments failing. And once I got pregnant there's no guarantee I'd make it out of the first trimester- we still don't know why I had two early losses. And If I did make it out of the first trimester- I'd be back in the hospital for another cerclage and another 20+ weeks of constant worry about bed rest and preemies. And I'd have to do all of that with a child who needs my full attention- not whatever is left of me after the shots and pills and bed rest.
So we are one and done. We won't do more infertility treatments- the chances of getting pregnant are so low even with IVF and the risk that comes with success is just too high.
We got lucky once and that is enough for me.
Friends for 17 years. Married 10. TTC since Jan 2009.
2013: IVF#3/FET#4 Elisabeth CJ born April 30, 2014
Cerclage, P17, and 3 months of bed rest brought us our Rainbow.
Dum spiro, spero.
our one and only *
DS - 2011
I have an autoimmune disease. That doesn't mean that I couldn't have more children, but it does mean that the possibility of having my symptoms flare up after delivery is very high.
In order to manage the disease, I have to take medication that can cause miscarriage and birth defects. Being off the medication could cause long-lasting issues that could effect my quality of life. I'm not willing to take the risks, so one and done it is (plus I just can't imagine how crazy life would be with more than one).
TTC #1
IVF #2 w ICSI-6/21/11 ER, 4 Eggs, 2 Fertilized, 6/24/11 3 day ET 2 embryos- Beta 7/5/11- BFN- No frosties.
NEW RE
IUI #1- started 50ius of follistim 1/25, IUI 2/3/12 - BFN
AMH-0.73- DOR 2/2012
IUI #2- 3/17/12 started 200ius of Follistim , 3/24/12 added ganirelix, 225ius Follistim and 75ius of repronex, IUI- 3/30/12, Beta April 13, 2012-BFN
Appointment with Dr. Schoolcraft at CCRM July 18, 2012
WAITING ON A MIRACLE AT THIS POINT
AMH tested again 1/2013- 1.4!!!!
IUI #3- 1/14/13 started 200ius of Follistim, 1/20/13 added menopur and ganirelix, IUI 1/25/13. Positive HPT 2/6/13- Beta #1- 193- BFP!!! 2/8/13-Beta#2-426.6
2/26 ultrasound #1- TWINS!
Delivered a healthy beautiful baby boy on 10/17/13 10ls. 2 ounces
IUI #4 cancelled due to only one egg responding
PAIF or SAIF Welcome
My husband was told, due to a physiological issue, he would likely not conceive. We tried and tried and our entire life, definitely our entire sex life, became about trying to make a person.
But it will be at the expense of our marriage.
So we have decided that we will stop trying now. Once our Little Dragon is born, we will do our best to be the parents of one child and be as grateful for her as she deserves. She is a gift. She is more than enough. She is the world.
I have an incompetent cervix and spent 15 weeks on complete bed rest with 3 of those weeks in hospital. I was able to make it to 34 weeks which was fantastic. I had complications with after-birth. The placenta didn't disconnect and start to hemorrhage so the OB had to attempt manual removal of the placenta. OB wasn't able to remove all of it so I had to have a D&C a few weeks later. During the D&C my uterus tore and they had to repair it.
After a year of trying to conceive baby 2 we went to fertility center and completed the testing. We discovered that the trauma for my first delivery left my uterus with severe scarring or Ashermann's Syndrome. I had surgery in March to try to remove the scarring but still only left with some good tissue for an egg to implant. IVF isn't really an option since its implantation issue.
I've tried to read through most of the stories but was curious if people considered adoption and their thoughts.
And it looks like we are one and done.
We were able to get pregnant easily. The second month trying, those two pink lines popped up. Here we go!
I suffered from debilitating morning sickness, and a recurrence of a disease called trigenminal nueralgia. All of the medications to treat the disease are dangerous for baby, and the pain is worse than childbirth. There is no cure. The pain was so bad, I tore out a muscle in my abdominal wall vomiting from it.
Finally at 20 weeks, with most of his major systems in place, we were able to find a drug where the benefits out weighed the risks.
Over the final twenty weeks, my body went into collapse from the pregnancy. I was severely anemic. My heart started having issues and I was referred to a cardiologist, who said my body was "just bad at being pregnant." - I was placed on modified bedrest to prevent permanent heart damage. I had a severe recurring kidney infection, with contractions, and had preterm labor stopped medically at 32 weeks. Finally at 37 weeks my body went into prodromal labor. My bile salts started to rise, a leading cause of still births, and my liver was showing signs of stress. By the time I was admitted for induction I was exhausted, and the doctors didn't know why one system after another was shutting down on me.
After 12 hours of active labor following a successful induction, I ended up with an emergency C section when my son shifted sideways when he began to crown. During the C section my vitals crashed several times, while my husband was still in the room. They did not show me my baby in the OR. About the time I lost awareness, the doctor pushed my husband (holding our newborn) out into the hall, and he saw a support team from the main hospital rush into the OR. I don't know what happened at that point, I woke up in the recovery room with my baby already on my chest. I did not see him, but I got to hold him. I didn't get to see my baby until the morning after he was born. Following the C section, I had a major infection requiring imaged guided surgery and a week of IV antibiotics in the hospital. A smaller secondary infection was treated out patient. I needed a blood transfusion.
Finally at 10 weeks postpartum I am finally allowed to return to something resembling normal. I can drive as of the week before last, I'm allowed to lift as long as I don't strain.
I don't know what damage the post op infection did to me physically, but the doctors are in agreement having another child would be extremely dangerous. Between the severe kidney infections, the heart issues, the liver problems, and the issues with delivery.... It's more important my son has a mother than a sibling.
Another pregnancy could go completely smoothly, and a part of me wants to try again to capture some of that joy I missed out on. I had visions of prenatal yoga, hanging out at the beach with my bump. Instead we spent more time in the hospital than anywhere else.
My son is a fighter, and he came through all this and is perfect. I'm trying to just enjoy being a one and done mommy.